Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Cathi
I am in Utah and there are no support groups in my area either! I have found THIS online support group to be SO helpful to me... I hope your experience is the same!
We would love to hear more about you!
Curt
Welcome. I think MG support groups are much like AA groups, but in a very different sense than Curt seems to intend. That is, not every group is right for every person and it may take awhile to find one which feels "right." Both groups function to keep a person well and supported through the rough times. Neither group can substitute for medical treatment or personal involvement in taking care and responsibility for your disase, but the "elders" can warn you when it seems things are getting off track. And for both diseases there is much that is ignored or misunderstood and both are fatal without intervention. All that said, I will go back to saying welcome, you will find lots of information and camaraderie here, not to mention affection and humor. This is a group that feels "right" for me, may it be the same for you. b.
The discussion lines and banter between the two types of support groups are nearly indestinguishable. There's lots of self-indulgence, little useful advice or help, and lots of moaning and groaning. People in both groups seem self-absorbed and more interested in "telling their story" than in really looking for answers or reaching out to help others. Here, on the other hand, folks do seem genuinely interested in helping others to find solutions to life with MG.
Dealing with live support groups was the worst mistake I ever made in seeking help from this disease. It made me so depressed. I wanted nothing to do with the people or with the disease.
Curt
I am really glad you are here and I hope you will, in time, be able to connect with others in person who also have MG. A few of the members here (and a few others we have found along the way) who are in my area have been meeting in person for the last 8 months and it has been a fabulous experience. It's great to have this forum to bounce ideas and problems around and find good advice but it's also nice to have a face to go with that name. I hope you find what you're looking for.
Cathi
sherry from texas