Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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Muscles & Bones
/ Myasthenia Gravis Support Group

Ivig

dktloans
dktloans
I joined yesterday. I am 66 male diagnosed in June 2014. Took 6months to be diagnosed. Still didn't believe it so I went to Yale New Haven in November for a 2nd opinion. It was confirmed. I take 20 mg prednisone. Mestinon up to 5times a day I urban. The pred induced diabetes so I take metformin. Had a very bad cold last month that really weakened me. Constant blurred vision and shortness of breath in addition to leg weakness and a lot of fatigue. Nest week I am going into the hospital for 3 days for ivlg. Any comments on that treatment?
Barbel
Barbel
I went into the hospital for my first IVIG too. Hydrate a couple of days before, during and after your treatment. Ask for Benedryl and Tylenol to keep you from having a reaction. Make sure they start with a slow drip at first and then increase as you tolerate it.

I did great my first day, but with very disturbed sleep (hospital noise) I had the worst headache the next day. After I got home and got some rest, the headache went away , do we don't think it was IVIG related. The next time I was in the hospital I made sure my husband was with me and I took extra strength ear plugs and a sleeping mask. It really did help.

Take snacks, ensures, fruit and nuts so you can eat when you get hungry.

I also especially try to eat clean before my infushion; no cheating on those days.

I've had three ivigs now and wished I had asked about them sooner.
Good luck!
DEEW4
DEEW4
I have IVIG every 2 weeks outpatient. I spend 4 hour in hospital. I only had problems the first time when the drip was too fast. I don't need any extra meds.
Try to relax, I remember the first time I was almost as afraid of IVIG as I was of MG. I thought it was just for worst case. I now look forward to my liquid gold.
You are at a good Medical Center. Thing will get better. Welcome to the club we all wish we didn't belong to.
Dee