Hi Lauren,
I just joined this group. I mean like a second ago...but saw that you posted and no one has responded yet. I was just diagnosed with MG about 2 weeks ago. Well, officially diagnosed as it was suspected for a while but the final thing that nailed the diagnosis was a single fiber EMG test.
My short (by standards of many others) experience with this diagnosis has been a roller coaster. Physically and mentally/emotionally. My nature is "fight it until I have nothing left to fight with," as I have many other autoimmune illnesses. It was kind of like once I got one autoimmune dx, several more followed and if I focused on all of the symptoms life would pass by and I would miss it. The way I have approached my dx is to try and focus my research on what I CAN do to help myself and my body become as strong as it can as well as work with my neurologist and other specialists. I happen to be one of the lucky ones who has a phenomenal neurologist who specializes in MG which is why I was dx pretty quickly compared to lots of other stories I have heard. I'm not sure I have helped much but the one thing I can say is that the spirit from which you approach this or any other illness has a lot to do with the path you will find yourself on. What I mean is, and I can't do this everyday so please don't think that I have this "down" but as much as you can, picture yourself well and strong and relaxed and healing the areas that are weak and really interfering with your life right now. The diagnoses with either come or another one will come, either way, in my experience, your approach to the information and how much you let it "become" you has a direct relationship with how your minutes, days, weeks and months go. I wish you all the best and am here if you ever need to chat or ask any questions. Ribbit :-)

Hi again,
Sorry, i just re-read your post to make sure that I addressed your questions and realized that I left out some things. My neurologist recommended myasthena.org as a good website. I ordered a couple of books about myasthenia gravis but because it is still somewhat rare, there is not a lot out there. The best book I am currently reading is Clean Gut by Alejandro Junger but that is because I am very interested in the nutritional side of helping neuromuscular disorders and have read some great research relating the gut biome to autoimmune diseases and since I suffered from anorexia in my teens, it can't hurt to try and fill my body with good fresh fruits and veggies and support my gut as much as I can. BUT this is not the "right" path for everyone. I think because this illness is so unique and never the same from person to person, the approach each person takes is also very personal. Not one right or wrong way... just your way and whatever way helps you put one foot in front of the other and be able to face each new day whatever it may bring, knowing that you as a whole person are stronger than an illness that tries to attack part of you.

In early 2017, I had Bells Pulsy and that was cured in a few weeks. In September 2017, I began to loose strength dramatically, and was admitted to Sunrise Hospital in Las Vegas. After three days of testing, the neurologists determined that I have Myasthenia Gravis. Now, I take four tablets of Pyridostigmine at 60mg per day. That keeps me going. I try to take every day, and that helps. Four small and healthy meals every day help too. Avoid stress, and try to be active as much as possible, but be conscious of you physical limits, and don't become too exhausted. During that first year with MG my condition was improving dramatically; then, in November 2018, my dentist used Lidocaine. That seems to be what caused a relapse that set me back to square one. Nuts! Now, in mid October, 2019, I have worked my way back to the pre-Lidocaine days. Great!!

As for research on MG, I suggest that you google on MG, and follow the leads there. I learn some from myasthenia.org, mgregistry.org, myastheniagravisnews.com, mda.org, etc.
So far, there is no cure, but only treatment so that we don't just collapse and die. Yaaa.
I personally tend to think that the onset of MG is caused by very excessive overwork, and/or emotional stress such that the delicate balance of the chemistry in our bodies becomes unstable, and the antibodies in our blood begin to attack healthy cells. In this case, those being the receptors on our muscles. Every time our brain initiates a notion to move a part of our body, that thought is transmitted via our nerves to the proximity of the muscles to enact the desired motion. The nerve endings excite Acetylcholine causing that to be transmitted through receptors in the muscle wall. MG is known to damage/destroy some of the muscle receptors, so that our muscles do not receive the entire message to . . . MOVE. For me, the weakness was first noticed in the bulbar muscles of the skull, i.e. eyes, balance, smiling, chewing, and general weakness noticed in all limbs. I thought, this can't good. LOL

I would refer to Google. There is a wealth of information out there to help you to understand MG.
I was diagnosed July 2019.

Hello,
My name is Jackson, I was diagnosed with Myasthenia Gravis in 2013. In my case, Myasthenia Gravis responded to my emotions, that is my negative emotions. I thank God that I was in the best physical condition of my life when I was diagnosed. I wore a patch over one eye and frost over one lens of my glasses to prevent seeing double vision. I didn't experience body fatigue until the second year, when my legs and arms lost all strength while training stair climbing. It took me four years to get mentally and physically balanced with the limitations of the disease. Several of the medication used to treat Myasthenia Gravis gave me life threatening symptoms, so please be mindful of your body. It's critical that you focus on what you can do and not what it takes away from you. Anger and stress can accelerate the symptoms. Having someone to talk with is very reassuring and comforting. Please try to avoid having a Myasthenia Gravis Crisis at all cost. I am a Life Fitness Coach, who truly trains today for life. If you have any questions please ask. hope this helps. Both of my Moderna Covid Vaccines triggered the Myasthenia Gravis conditions, for several days.