Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Just curious. Who here is not on any form of dmd? I was on Avonex, then, switched to Tysabri. But, I had to stop the Tysabri due to a move, and then the next dr. chose to put me on something else. However, I have not been able to work out the finances for how to pay for the drug. So, I have been off my med now for almost a year and a half.
I am just wondering who else here is not on a dmd.
When I was on the 2 before mentioned drugs, I did not see any physical changes for the better.
When I had to stop the Tysabri, my body went into the "Rebound Effect" which caused my system to work faster on the active lesions. :( So, now, I have triple the amount of active lesions in my brain than what I had when I first stopped the treatments.
So, I am just curious who here is not on any dmd meds, and how it is affecting you?
thank you for all imput on this subject.
I am just wondering who else here is not on a dmd.
When I was on the 2 before mentioned drugs, I did not see any physical changes for the better.
When I had to stop the Tysabri, my body went into the "Rebound Effect" which caused my system to work faster on the active lesions. :( So, now, I have triple the amount of active lesions in my brain than what I had when I first stopped the treatments.
So, I am just curious who here is not on any dmd meds, and how it is affecting you?
thank you for all imput on this subject.
Anyhow, so, I sent the above post tonight.
I am just wondering a great deal about this. Since I know that according to the Neuro, I am currently in the Rebound Effect. Meaning the disease is running ahead of the game, and I am getting more active lesions than ever before.
I do deal now with a few more issues than I did back when I was on the Tysabri, and the Avonex. However, I didn't ever really "feel" changes. The only thing I noticed while on Tysabri was that after the infusion, I felt like I had a little more energy. Then, as I got to the end of the month I felt more fatigued than usual.
Other than that, I didn't ever see (or feel) a change in the other symptoms. Still just as numb on my entire right side as I was four years ago. Now, dealing with more numbness, as I have issues on the left side also now.
Still walking with use of cane. Now more than before. Having had more recent falls due to the balance issues.
Still dealing with dizziness. Still dealing with L'Hermittes Sign issues. So, several of the things that took me into the hospital where they discovered the MS dx, still taking place in my life.
So, yeah, I feel like I am worsening now. Without med's ...but, I didn't ever "feel" like being on the med's was changing the situation either way.
Sorry this is long. I just am wondering who here is still not on any of the dmd's.
I kind of want to be back on something. But, I can't afford it right now. That is stopping me from getting back on. :(
But, as I said, when I "was on" I never really "saw" a difference.