Multiple Sclerosis (MS) Support Group
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White Brain Matter and Thinning Brain Veins
rsimmons
Hello folks,
I just had an MRA of my head done( this was with contrast). As is my nature, I immediately requested a copy on cd so I could go home and study it for myself. Since I requested my copy on the same day, just moments after having done, the report from the radiologist had not been done yet.
Anyways, I take it home and pop it into my laptop, and then pull up images of MRA's on my other computer so that I can compare in order to understand what is normal and what would not be considered normal.
Long story short, my MRA looks almost identical to those with occlusion of the basilar artery. Following is my web site for you to view:
https://sites.google.com/site/mramricomparison/
Anyways, today I had an appointment with an Ear, Nose and Throat specialist to see if he could figure out if my vertigo was coming from an inner ear problem. I mentioned to him that I had an MRA done on Sept. 30th and that maybe that could shed some light on the problem. I was very interested in hearing what he might tell me since the doctor who ordered it had not contacted me yet with results. So he to told me he would go and look at my MRA results and be right back.
When the ENT doctor came back he asked me if I had seen a Neurologist. I told him I had. Then he asked me what he had said, so I told he that the neuro had told me that there was nothing wrong with my nervous system. He then said solemnly that he was going to refer me back to my neuro because there appears to be some thinning of the nerves in my brain and that a neur would better be able to explain what was going on. I was not completely surprised buy this because as I'd mentioned earier I had examined the MRA myself and noted the difference in mine compared the pictured posted as normal on the web.
OK. This did not unset me. But what did upset me is that after a saw the ENT specialist, I walked over to the imaging lab and requested a copy of the radiologist's report for my MRA, and it said it was normal. I was so upset and confused. I still am. Every test I have had at this hospital comes back as normal. Now I have had one MRI showing white spots, which my neuro told me to forget about, and now, 6 months later I have another MRI, plus an MRA that show white spots and abnormalities in my "Circle of Willis, and it is not acknowledged by the radiologist! What the heck is going on.
Can anyone give me a logical explanation for this strangeness? I am really starting to think there is a conspiracy going on.
But really, what could this be?
I just had an MRA of my head done( this was with contrast). As is my nature, I immediately requested a copy on cd so I could go home and study it for myself. Since I requested my copy on the same day, just moments after having done, the report from the radiologist had not been done yet.
Anyways, I take it home and pop it into my laptop, and then pull up images of MRA's on my other computer so that I can compare in order to understand what is normal and what would not be considered normal.
Long story short, my MRA looks almost identical to those with occlusion of the basilar artery. Following is my web site for you to view:
https://sites.google.com/site/mramricomparison/
Anyways, today I had an appointment with an Ear, Nose and Throat specialist to see if he could figure out if my vertigo was coming from an inner ear problem. I mentioned to him that I had an MRA done on Sept. 30th and that maybe that could shed some light on the problem. I was very interested in hearing what he might tell me since the doctor who ordered it had not contacted me yet with results. So he to told me he would go and look at my MRA results and be right back.
When the ENT doctor came back he asked me if I had seen a Neurologist. I told him I had. Then he asked me what he had said, so I told he that the neuro had told me that there was nothing wrong with my nervous system. He then said solemnly that he was going to refer me back to my neuro because there appears to be some thinning of the nerves in my brain and that a neur would better be able to explain what was going on. I was not completely surprised buy this because as I'd mentioned earier I had examined the MRA myself and noted the difference in mine compared the pictured posted as normal on the web.
OK. This did not unset me. But what did upset me is that after a saw the ENT specialist, I walked over to the imaging lab and requested a copy of the radiologist's report for my MRA, and it said it was normal. I was so upset and confused. I still am. Every test I have had at this hospital comes back as normal. Now I have had one MRI showing white spots, which my neuro told me to forget about, and now, 6 months later I have another MRI, plus an MRA that show white spots and abnormalities in my "Circle of Willis, and it is not acknowledged by the radiologist! What the heck is going on.
Can anyone give me a logical explanation for this strangeness? I am really starting to think there is a conspiracy going on.
But really, what could this be?
I agree with you that sometimes these doctors, radiologist, and specialist, all seem to either care completely or not at all.
I think you should take your copy of the disk..shred the radiologist report and find another neuro. One that won't tell you to forget the white spots, but tell you exactly what they are and what the ENT seen that would concern him.
Sometimes I think radioligist get behind on things, then all at once just say yes or no and pick a few to realy go over ect...lol maybe it's just me but I am frustrated with you.
I appreciate it. BTW, Welcome to the site. I know you will find much support here.
I have.