Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Hello All,
I had an interesting experience at the lake. A bunch of us were playing volleyball in the water. Every time I tried to hit the ball, I fell down. We switched from volleyball to badmitton and the same thing happened. I'll bet I fell down in the water about 50 times. I didn't really mind falling since falling in the water is pretty painless. Instead, I just laughed. I was playing these water games with family members and they really didn't know how to respond. Fortunately, they laughed along with me (at first I think they thought I was just faking because I have demonstrated a flair for the 'dramatic' in the past). The falling revealed to all present that MS has affected me. While having fun 'playing' in the water, the MS became very visible. Since my diagnosis is still somewhat 'new,' the reality that I do have this disease probably sunk in for my siblings and other family members.
Day 2 the same thing happened--fall down over and over. I still swim well--not affected at all that I know of when swimming and can 'walk' or wade in the water w/o a problem...but any slight lunging movement and down I go. Have any of you had this experience in the water? I know that I have balance issues, but thought that since taking the Avonex, they had almost disappeared. Then, today, when going up a flight of stairs, I lurched to the right and nearly fell into the wall. So...I really don't know what is happening. I'm not really worried; just curious if anyone else has had something similar happen?
I had an interesting experience at the lake. A bunch of us were playing volleyball in the water. Every time I tried to hit the ball, I fell down. We switched from volleyball to badmitton and the same thing happened. I'll bet I fell down in the water about 50 times. I didn't really mind falling since falling in the water is pretty painless. Instead, I just laughed. I was playing these water games with family members and they really didn't know how to respond. Fortunately, they laughed along with me (at first I think they thought I was just faking because I have demonstrated a flair for the 'dramatic' in the past). The falling revealed to all present that MS has affected me. While having fun 'playing' in the water, the MS became very visible. Since my diagnosis is still somewhat 'new,' the reality that I do have this disease probably sunk in for my siblings and other family members.
Day 2 the same thing happened--fall down over and over. I still swim well--not affected at all that I know of when swimming and can 'walk' or wade in the water w/o a problem...but any slight lunging movement and down I go. Have any of you had this experience in the water? I know that I have balance issues, but thought that since taking the Avonex, they had almost disappeared. Then, today, when going up a flight of stairs, I lurched to the right and nearly fell into the wall. So...I really don't know what is happening. I'm not really worried; just curious if anyone else has had something similar happen?
Since then I find myself falling suddenly with no cause. I am unable to do anything but I am aware as it happens. One time I fell on my friends dog. Luckily he was a big friendly dog. Another time I was in New York City and I fell in the street. People were very nice. My friends have gotten used to me falling suddenly. I rest for little bit and what ever it is seems to pass. I think these are MS episodes that come and go.
I think the message from my muscles doesn't reach my brain or visa versa. I'm on Avonex also. My usual problems are concerning my thinking not physical. I'm sorry I don't know what to do about it. I probably shouldn't try to explain it but I thought I would tell you, you are not alone. I hope someone else can be more helpful.
Michelle
Also, remember that the CRAB's are not doing anything for your sx's and were not meant to. They are only for trying to slow or stop any future relapses.
Best wishes and I hope it eases up for you!