I'll be thinking of you and praying for you. Please let us know what happened. I'm sure someone will help you take care of your babies (dogs)!. Best wishes.

My prayers are with you.I can empathize with inpatient mode..keep us updated..best wishes for a quick recovery..

Oh PaintWarrior, I am so sorry that you are having difficulties!!!!

Dear Paint: I will be thinking of you as you go thru this. I know how much the dogs mean to you. I am sure someone will step in and take care of them. Keep us posted and know you have a support team behind you...even if it is virtual. :)

Melanie

Thanks sooo much guys!!!! Love back at cha!!! I finally got back! They did chest x-rays & a ton of bloodwork! They said that it was all okay! They think that the infection is viral based on that! And, I don't have pneumonia!!! YET!!!! So that's good news!!!

But she was very every concerned about the constant infections! And, about all of the MS related symptoms. She told me that I was definately on the right path! She said that in her opinion that it is definately an autoimmune disease!!! She said that I was totally on the right path with that!!! She said that in her medical opinion it was definately an autoimmune disease causing all of this--the infections & all those other crazy symptoms!!! She said that those symptoms were pretty serious, pretty bigh stuff, & that it was NOT normal!

She told me that I should not mow my yard!!! Esp.... with a push mower! If I do mow it that I need to do it with a very safe riding mower!!! She said with me having either MS or some other AI disease that it was wayyyy to dangerous for me to be push mowing, or mowing in general!? Like if I fall or pass out or anything like that & I'm mowing, esp.... on a slope that I could get mowed myself!!! I could choped up, lose a limb, die!? Any of the above!? I told her that I did know & think of that often!!!! But, it's just that I can't afford to hire anybody! And, I don't have anybody that will do that kind of hard work for free!

So, anyway!? It didn't do a damned thing for this damned aweful infection! BUT..... It did do a lot along the lines of getting a confermation on me definately having an autoimmune disease!!! I now have more confermation that I'm right on with that!!! That's what she said when she came in the room!!!!! That I was right on the money with that when I thought that!!!

Well, I got to run out & run an arron right now! Be back later......

LOVE & PEACE TO ALL!!!!!! :)

hi painw,
sorry to hear about your problems,are you just now getting dx?....thats what im thinking you are saying.....if so then i will keep you and your docs in my prayers....in the begining with me,i was scared to death....ill never forget the first day i woke up,went to stand up from bed to go potty and fell right on my face....

here it is many years 14 about,later,and im ok knowing what i have.but didnt get dx till 2005,before that it was all said to be fibro...now its both...long road ahead still but i read an article today that showed that after first being dx with m.s.that 6 mnths later most accept it better and concentrate better on how to survive.

your in my prayers
amy

your dr is an idiot that has never mowed grass. Any mower than was manufactured in the last 20 years shuts off as soon as you let go of the handle. Thisis a safety feature mandated by the federal governmnet. You would not get chopped up.

I will keep you in my prayers warrior! I was thinking about you yesterday and wondering how you were doing, I had not heard from you in a while. Best of luck with the ER!

Best of luck to you and like Ichoppel siad, keep us updated if you can.

AMERIKA--I don't know for sure if I can that or not? But I suppose that you could say that I am finally getting some kind of diagnosis! I don't know if she put that diagnosis down or not, but she did say to me, point blank "I absolutely/totally believe that you are on the right track when you we're thinking & talking about all of this--all of this being an autoimmune disease!!! I absolutely firmly belive that you are definately right on this! I have no doubt in my mind that all of this, when you put it all together & look at the whole picture in it's entirity definately adds up to some kind of autoimmune disease!!!" "I think that you are definely on to something with that! Your right! All of your/those neurological symptoms that you are having & have been having are definately some serious neuro problems that are strong indicators of something serious for sure! And, the bad infection that you have right now, & all of the ones that you have had before this;& the fact that they stay sooo long & that they are sooo hard to get rid of, & that AB's don't seem to work on them!? And, the many many falls; & dropping things all the time; the cold & heat intolIerance, esp.... the passing out & walking like a drunk, & your brain shutting down & not working; it definately all points to an autoimmune disease of some kind!!!??? I don't have any doubt in my mind that is caused by an autoimmune disease! OR diseases!" AS ONE MIGHT GUESS!? IF YOU HAVE ONE AI DISEASE, THEN YOU CAN EASILY HAVE ANOTHER!!! AFTER ALL AN AI IS ANY DISEASE CAUSED BY YOUR IMMUNE SYSTEM TURNING AGAINST YOUR OWN BODY, ETC.........

I mean, this doc really really listened when she came in, & really examined me closely! And, she really listened to the fact that this is not simply a one time infection or a just simply a virus that will go away & then puff! No other problems! I told her--Look! I have these infections all the time!!! I stay sick!!! And, I think that something is seriously wrong! I think that it is in NO WAY normal to be sick non-stop & to have such a long hard time getting over them! I told her; Look! I have taken every AB that I can take! And, I just got through, & am still taking the most potent AB that you take by script/mouth at home, or from a doctor office!

In fact, my other doc Jamie had sent me there because I had taken the most potent thing that I could take! And, I have been sick for a month now!!! I told her that nobody's been steping back & looking at the whole picture here & taking me seriously!!! She ask if I had told my doc or any doc that I had seen about all of this! And, I told her--YES!!! I HAVE!!! But when I start telling them all of this, & I start listing all of my symptoms or show them to them on paper, they have just all thought that I am a "crazed, drug-seeking, lunitic!!!!" That's what this Jamie told me when I first went to see her! She told me--You know what doctors think when you tell them or show them all this shit!? They think that your some crazy drug-seeking lunitic!!! And, I told her, YES!!!! I GOT THAT BY THE WAY THEY SUDDENLY CHANGED THEIR BEHAVIOR & BY THE WAY THEY SUDDENLY STARTED TREATING ME & BEING SO STRANGE! AND, BY THE WAY THAT THEY SUDDENLY STARTED ACCUSING ME OF THINGS I NEVER SAID OR DID!!! AND, THEN JUST GETTING RID OF ME!

BUT I TOLD JAMIE--LOOK!!! IF YOU WILL STEP BACK & TAKE AN HONEST MEDICAL LOOK AT ALL THIS YOU WILL SEE THE BIG PICTURE & WILL REALIZE THAT SOMETHING IS SERIOUSLY WRONG HERE! I MAY NOT BE A DOCTOR BUT I AT LEAST HAVE ENOUGH SENSE TO KNOW THAT THIS ISN'T NORMAL & THAT SOMETHING IS WRONG HERE!

I told her--both of them!!! Look!!! I got text book symptoms of MS, & I need to be taken serious & I need to see the right doc or the right specialists & get all the right tests done here to see if it is that! If not then it is some kind of AI disease, because it acts just like one!!!

Jamie wasn't too sure about that so she said, Okay!? What makes you think you have MS??? And, I told her: Well for one! Dr. Hammett at the Urgent care clinic that I have seen for many many years--telling me that in his opinion--after seeing me & my very strange weird symptoms for all these years has come to the conclussion that I definately have MS! I told her! Not only does he believe that as a long time doctor of mine!!! But he also has personal experience with it!!! As his sister-in-law has it! And, she's always at their house!

And, Dr. Hammett, told me that I am just like his SIL!!!! He told me that my symptoms have followed the same path as hers, per batum! That we both started out with the same kind of freaky weird, bizzare shit!!! And, that our symptoms had been the same per batum!!! And, then he sent me to an eye specialists who checked my eyes & also said: There is nothing wrong with your eyes themselves!!!! And, in my opinion either the part of your brain is damaged that controls your vision, or it is some kind of bad migraine causing it, or you are having seizures, or it is MS!

Then, I went to Dr. Crawley--my ENT specialists for him to check out my ears & hearing problems! And, we talked about that & the blurry vision that came with it! Then, we went over all of my other symptoms! And, then he too said: Well!? I'll just tell you! Every patient that I've had over the many years that have come in here to me with those same exact symptoms has either has either had MS, or has gone on to be diagnosed within the next five years of coming in here with all of that! And, his first thought was MS & that I needed to see a really good MS neuro to be tested & to find out!

So I told the ER doc that too!!!

And, then I told Jamie about all of my MS type symptoms! The sudden blurry vision one morning that lasted for 3 days & had the hearing shit to come with it! Then, the whole heat intolerance thing with me sweating perfusely & my legs turning to jello & my brain to mush, & me staggering/walking like a drunk when that happens! And, then getting woozy! And, then I start passing out! And, then there's the not getting to sleep, & then when i do constantly waking up, or not sleeping good! The severe chronic pain! All the body muscle spasms/& spasticity issues! The flashing lights that suddenly showed up one night & then stayed for about 3 months & then left the same way that they came!!!! And, then there's all these damned infections!!!

I've been sick for over 3 yrs now! I did finally get to a point, through a good allergist where I wasn't sick for several months! Then BAM!

Chronic infections, esp... Sinus Infections! Being sick a lot & getting a lot of resp... infections, esp..... sinus! Yeast Infections! Problems sleeping & falling to sleep; Severe Chronic Fatique; Muscle & Joint Pain; Muscle weakness; Swollen Glands; Inflammation; Blood pressure changes--esp.... low BP; Weight gain or loss, esp in the 10-15 range; Allergies; Digestive issues; Anxiety & Depression; Memory problems; Thyroid issues/problems; & severe PMS with pain bloating, severe bleeding--I had to have a hysterectomy do to all of that! All of these are major signs of an autoimmune disease!

And, I have ALL OF THESE!!!!!! AND, HAVE HAD THEM FOR A VERY LONG TIME NOW!!!!! And, I went over that with both too!

The one at the ER really listened to all of that & then did whatever tests that she felt needed to be done!

And, then that's when she came back in & said all of that! And, she is convinced--after the test & after the exam & after our through talk before the tests, & after giving all of that & a lot of thought that that is what I have! She said that the fact that I have soooo many infections, & that they are sooo hard for me to get rid of! And, that I've had soooo many for so long!!!! And, that they put me on all of these potent AB's definately points to that!

She really went out & took all of what I said to heart! And, she gave it great deep medical thought! And, probably discussed it with the doctor at the ER! They usually do there!

And, when she came back in & then pulled up a chair & we had a very long talk--she told me all that, but she ask me a lot of questions too! She ask me if I had talked to my doctor about all of that & had gone over that with detail with her? I told her that I had talked to Jamie about that on the 1st visit & what she had said about what docs think of me when I tell them all of that!

But that she was going to do a bunch of test & do some paperwork, FINALLY!!!! And, then see about referring me to an RA! But Jamie said that that would take 3-6 months! And, then Jamie did say that there were some other docs & people that could help me in the mean time & that she would refer me to them while I was waiting to see the RA! So!!!! That is very very good!!! That Jamie is finally maybe going to do that! AND....... that she realizes that I am suffering & need help in the mean time & is going to try to get me to some other docs/people in the mean time that can maybe actually help! Though I don't for the life of me know what kind of docs or treatment that she is talking about??? And, I did tell the ER doc that!

She said that I really needed to have a very serious talk with my family doc!!! And, that I really really needed to get her on board!!! She said that there was a LOT of test that I needed to have done & that I needed them done ASAP! She said that I really need to be tested for LUPUS as well! She seemed to imply that she thought I might have LUPUS as well!?

But she definately took me & all my shit very serious! And, definately thought that things needed to be done ASAP!!! She told me--YOUR DEFINATELY ON TO SOMETHING WITH YOUR THOUGHTS & BELIEFS!!!! AND, YOU NEED TO PURSUE IT WITH GREAT DETERMINATION!!!! YOU NEED TO MAKE SOMEBODY LISTEN & DO ALL THE NECESSARY TEST! SHE TOLD ME NOT TO GIVE UP ON DOING THAT!!!!!

I told her how badly this had disrupted my life, & had torn it all apart! And, I told her how because of all this shit that I had to endure sooo much abuse, & sooo much crap!!!! From everybody! Esp... doctors, medical establishments, & esp..... my son! I told her that they all have thought that it is all in my head, that I'm making it up, that I'm LAZY!!!! Lots of people!!!! Son included have thought that i am just lazy as hell & that i'm making up all of this shit so that i can use it to use people & manipulate people, so that I can get money, drugs, & all kinds of free shit!!!!

I told her that I was having to live off of 490 a month!!!! And, that nobody could do that!!!! NOBODY!!!! I told her that I had continued to become more & more disabled!!! And, a lot worse off physically! And, that I was getting more down, more disabled, & less & less able to do things, walk etc.....

And, i told here that I had grown terrified & very very afraid because front one minute to the next, & from one day to the next that I didn't know if I was going to have my vision, be able to see, or have blurry vision, flashing lights; or if I was going to lose my hearing; or my ability to walk--& wind up on a cane all the time, or a walker, or in a wheelchair, or scooter or what!? And, I told her that I had been sooo bad that past week that I had ordered a special cane to help me get up & down & to help me get around or to even walk at all! And, I also told her that I had been looking at scooters now & that if I had had one that I would have absolutely used it!!! And, I am going to talk to Jamie about getting one! See if she will perscribe one for me!?

I told the ER doc also that all this stuff was messing me up sooo bad & that it was almost impossible, if not impossible to make it! And, that I had become more & more afraid to live!!! And, to live alone! I told her that I was becoming less & less able to take care of me, the place, etc...... And, that I was terrified for me, my place, & esp..... my beloved dogs!!! I told her that my dogs mean more to me than anything!!!! And, that I was/am an out door person!!! That being with my dogs, & being independant, & on my own & doing all the things that I wanted & loved to do was ME!!! ME!!! I told her! That is who I am!!!! And, all of this shit is taking & robbing all of who I am!!!! And, if it takes & robs all of who I am then there is nothing left!!!!! And, then there is no reason for me to be here!!! To stay here!!!

I told her that it had cost me my own son!!! And, all about that BS! And, I told her that my best friend was pretty much taking care of me now!? At least finacially!?

They came out here to either collect the money for the van or to take my van! Told the doc this too!!! And, they could'nt get to me or the van when they came so they left a note! My beautiful, wonderful, angel of a best friend, came all the way across town to pick me up; drive me to another town, & then drop me off at the ER while she went up the street to one of the many loan offices & paid up my payments! She paid 400 out of her own pocket!!! Just so I wouldn't lose my van!!! Then, she came back to the hosp.... & set in the waiting room & waited on me!!!

Then, she drove me all the way back to my place! Then, she said Okay! I know that you can't go anywhere that you need to go in the van because you have no gas!!! And, so I am going to give you some more money, so you can buy your gas & whatever else you need! So I got a tank of gas! And, they were about to cut my internet off--which is the only way I have to communicate! I don't have any minutes for my phone but I can use my google phone on the computer! So I used the rest to pay up my internet!

I told the doc--LOOK!!!! IF IT WEREN'T FOR MY DEAR ANGEL OF A FRIEND HELPING ME THESE PAST 3 YRS & STICKING BY ME THROUGH ALL THE SHIT, & HAVING MY DOGS & THEIR UNCONDITIONAL LOVE TOO--I WOULD SIMPLY NOT BE HERE! AND, I TOLD HER!!!! I CAN'T KEEP DOING THIS!!!! OR LIVING LIKE THIS!!! BECAUSE I CAN'T LET MY FRIEND SUPPORT ME ALL THE TIME!!! IT'S NOT FAIR TO HER!!!!!!!

AND, GOD BLESS THIS BEAUTIFUL, WONDERFUL DOC!!!! SHE VERY QUIETLY & VERY PATIENTLY LISTENED TO ALL OF THIS! I CRIED MY EYES OUT THE ENTIRE TIME WHEN SHE CAME BACK IN & WE HAD OUR SECOND TALK!

SHE JUST FELT SOOO BADLY FOR ME & JUST REALLY WANTED TO HELP ME & TO FIX ME & TO GIVE ME MORE ANSWERS!!!!!

AND, TO THE PERSON THAT SAID THAT SHE'S AN IDIOT!!! NO SHE'S NOT!!!!!!!! SHE'S FAR FROM IT!!!! SHE'S THINKING OF ME & MY LIFE & MY SAFTY!!!! SHE DOESN'T WANT ME TO GET HURT REAL BAD, OR TO GET HURT AGAIN, OR TO DIE! AND, THAT IS HER BEING KIND & COMPASSIONATE & SMART!!!! NOT HER BEING AN IDIOT!!! AND, SHE'S THE FIRST THAT HAS EVER CARED LIKE THIS OR THIS MUCH!!!! SO THAT WASN'T VERY NICE TO SAY ABOUT HER!!!

AND, THAT SO-CALLED SAFTY FEATURE DOES NOT WORK ALL THE TIME ON ALL MOWERS! IN FACT THAT FEATURE DOES NOT WORK AT ALL RIGHT NOW ON MINE!!! BECAUSE THAT CABLE TORE UP & I HAVEN'T BEEN ABLE TO BUY ANOTHER ONE & TO FIX IT YET! AND, I HAVE HAD THEM GO OUT ON RIDING MOWERS TOO! THE SAFTY SWITCH!!!

SO SHE IS NOT STUPID!!! AND, SHE IS NOT AN IDIOT!!!! AND, I COULD EASILY GET HURT OR CUT UP REALLY REALLY BAD OR EVEN DIE DEPENDING ON THE INJURY! SO SHE IS RIGHT IN HER THINKING!!! AND, YOU ARE NOT!

AND, I DON'T MOW EVERY WEEK WITH IT BECAUSE I AM SIMPLY NOT ABLE TOO! AND, REALLY!? I AM GETTING TO WHERE I CAN'T MOW AT ALL WITH IT!!!

Sooooo anyway I said all of this to kind of answer the question & to also let all of you know how the visit went! So even though I have not been offically diagnosed yet on paper to my face--she may have put it in the records??? I am about to finally get a diagnosis I feel!!!!! I am getting closer & closer!!!!! I finally have a definate on the AI disease/s! But I don't have a definate as to which one yet!?

And, Jamie seems to be finally getting on board!!!!??? And, may finally get me some help & some relief!? So YES??? I am finally kind of getting newly diagnosed!? :) It seems!? I hope! Kind of!

I want to know for sure because I NEED TO KNOW WHAT IS WRONG WITH ME & IF CAN BE FIXED, OR AM I GOING TO DIE, OR AM I GOING TO HAVE A SUPER CRAPY LIFE THAT MAKES ME WISH I WAS DEAD!? OR WHAT!?

AND, JUST HEARING THAT!? IT WAS A HUGE RELIEF ON THE ONE HAND!!! BUT IT SEVERLY DEPRESSED ME ON THE OTHER HAND!!! AND, I AM STILL BADLY DEPRESSED ABOUT ALL OF THIS!!!!

I AM SOOO DAMNED SICK & TIRED OF BEING SOOOO DAMNED SICK & TIRED!!!! AND, I DON'T WANT TO BE SICK ANYMORE!!!!!!!!!!!!!!! I'M TRULY SICK OF IT!!!!! AND, I DON'T WANT TO BE THIS EXHAUSTED OR THIS MUCH IN PAIN ALL THE TIME!!!!!!!!!!!!!!!! I'D RATHER DIE AS DEAL WITH THAT FROM NOW ON!!!!!!!

AND, YES!!! LIKE YOU!!! I AM TERRIFIED!!! I AM TERRIFIED TO DEATH THAT ONE DAY MY LEGS JUST WON'T WORK ANYMORE!!!! AND, THAT I WILL BE IN A WHEEL CHAIR OR A SCOOTER!!!! BUT I'M TERRIFIED OF THE INJURIES THAT I WILL GET WHEN I FALL & BUST MY FACE!!!! AND, WHAT THOSE INJURIES WILL COST ME!!!! AND, I AM SOOOO VERY SORRY FOR YOU & THAT YOU HAD TO GO THROUGH ALL OF THAT!!!!!!

ANYWAY AMERIKA--THANK YOU SOOOO VERY MUCH!!!!! HOW KIND & SWEET!!!! AND, THANKS AGAIN TO ALL OF YOU!