Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
My neurologist isn't sure if I just have fibro or ms or both. He's ordered a bunch of blood work, an emg and is currently trying to treat the symptoms which ranges from mild spasticity and tremors to I'm so hurting, stiff and tired my hubby has to roll me out of the bed in the morning and help me to the bathroom. Some days I feel like I can predict the weather better than the weather man lol!
I'm on Keppra for the spasams, cymbalta for pain and depression, daily b-12 injections, zolpidem for the sleeplessness, and a muscle relaxer as needed. My neuro is taking a wait and see approach to my symptoms and is wanting to run a mri after the first of the year. He's mentioned taking the beta interferion meds as a preventative.
I'm already on a lot of meds I don't really want to be on, but I don't have a lot of choice if I want to function. Anyone else in a similar boat? Have you started the beta interferion meds, and what are your experiences? Do the risks outweigh the benifits?
I'm on Keppra for the spasams, cymbalta for pain and depression, daily b-12 injections, zolpidem for the sleeplessness, and a muscle relaxer as needed. My neuro is taking a wait and see approach to my symptoms and is wanting to run a mri after the first of the year. He's mentioned taking the beta interferion meds as a preventative.
I'm already on a lot of meds I don't really want to be on, but I don't have a lot of choice if I want to function. Anyone else in a similar boat? Have you started the beta interferion meds, and what are your experiences? Do the risks outweigh the benifits?
bladder control, fatigue, spasticity, sleeplessness. It was years before I got a dx. I have tried several medications but not any of the injection drugs. I have trouble with side effects and they have LOTS of those. The things I take are gabapentin for the neurologic pain. It helps without hurting me. I just started taking amantadine to help control fatigue. It is also helping without too many side effects. MS is so different for each person. Fibro may be the same. Good luck. I hope you find things that help you. There are about to be some new medications on the market for MS. Some oral with less side effects.
Why does he want you to go on interferons with no DX?
I've never messed with any of these injectable drugs and I am holding my own for my age with this disease.
I've seen and known many that have used them and I remain unimpressed with the results (and that goes for steroid IVs, and steroids in general btw) and therefore I do not care to use them.
If I thought for a minute that they might help, I'd consider them but being I do not believe they do anything at all to help, I opt to stay away from them.
If I was you, I'd be looking for another opinion.
I was surprised with the almost pain free injections.(The autoinjector feels like a mosquito bite or less pain.)
I am not sure what the future holds for me, but I feel better once that I am doing something that should help me.
As far as waiting for the mri, I would look at your insurance deductible, if it resets on January 1, I would ask about getting this done before hand.
Good luck with your diagnosis.
Darla