Multiple Sclerosis (MS) Support Group

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mamak1118 07/29/2014

As if it's not bad enough suffering with fatigue and all-over weakness because of the heat this summer, now I have this tingling feeling in my feet and lower legs. Feels like my feet are falling asleep, but never get there completely. It seems to come and go, but mostly it's sticking around. I don't have experience with getting new, permanent symptoms. Could this be permanent, or does anybody have experience with symptoms that go away after a few weeks? I really would hate to have this one forever!

Thanks for any help!
Kristi

gbugg7777 07/29/2014

YOU SHOULD CHANGE YOUR DMD ...GOOD LUCK

IsJusMe 07/29/2014

you describe that so well Mak!!
i have found the tingles.. sides of face, hands,
lower back running hip to hip, seat, calfs and
feet were my first symptoms. they became part
of me one area at a time and so far permanent..
the tingle is so much more fun then when they
decide pain is the plan for today..

but ...what felt like a high pressure squirt gun filled with
hot or cold water hitting the back of legs and back of
biceps either 1 of the spots or all 4 at the same time
was a very strange sensation. i put my hand on the spot
looking around fully expecting to find one of my kids thinking
it was funny to squirt mom.. only to find no one was close..
that i an happy to say, i have not had to deal with in quite awhile.

gotta grin
gotta smile
gotta laugh!!
Take care Mak!
^_^

mamak1118 07/30/2014

Thanks for the replies. Waiting for Tecfidera to get approved. :)

Orsova 07/30/2014

My symptoms began with tingly feet. It progressed to burning and although the burning has stopped, I still have the tingles.

My neuro told me that I have 'residual damage' to my feet - that is, that the MS has permanently affected my feet.

It feels like sparklers going off in my feet.

I'm used to it now and assume that until someone discovered how to repair myelin I am stuck with it.

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