Multiple Sclerosis (MS) Support Group

This community is a place where members can discuss current events and weigh in on what's going on in the world.

0 Online

peachybum 04/09/2012

Hi

I do not have MS i have Parkinsons Disease. I saw this on television the other night, and thought is might bring those with MS some encouragement.

Click onto the link, and on the right hand side lower, click onto the Chrissie Amplet link

I hope this finds a cure for MS and leads to a cure for us with PD

http://au.news.yahoo.com/sunday-night/#fop

deleted_user 04/09/2012

I watched this last night .I actually had read about it online the night before. I am interested in seeing the future results of investigations into this treatment and the philosophy behind it. Here is a link to whatr i read http://www.sciencebasedmedicine.org/index.php/lithium-for-als-angioplasty-for-ms/

irishrooster 04/09/2012

That was so nice of you peachy!!!

You must be a super special person to go outta your way to actually find this board and send a good message like you did!!

Thank you for caring bout the people here. Please know that the folks on this board are some of the finest you could ever know. We will always remember how special you are!! Thank you so much and I hippie and pray that they find something for Parkinsons soon also!! My heart is with you!!

Love,

Irish

lchoppel 04/09/2012

Thank you for reaching out to friends in need by posting this link. I too hope that there will soon be a treatment for both of these diseases.

To all members who watch this video, please note that this is a very old video and some research has been done on CCSVI. I find the video to be misleading. To get the latest, please go to the MS Society or http://www.msassociation.org/news_center/article.asp?a=ccsvi for the latest information and findings. I dont think to date anyone has organized the results of CCSVI in which they can disseminate information accurately. Also, there is a MS World site, http://www.msworld.org/forum/forumdisplay.php?f=92 or This is MS http://www.thisisms.com/forum/chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic12342.html sites discussing this procedure you may find interesting.
Its not how you are immediately after the treatment but how you feel 6 months after the treatment.

mjideas 04/09/2012

Thank you peachybum for caring enough to post this, My one thought as I watched this was how current is the video? Lynne has now answered that.

That doesn't change the fact that this procedure works well for some. But you get symptomatic relief not altering the disease itself from what I have heard,. Some on this board have had it done, I am thinking about it. My neurologist completely condemmed it with a frightening scenario.

I subscribe to a blog where you can find more information:

http://ccsvi-ms.ning.com/?xg_source=msg_mes_network

and a patient wrote a book on her experience:

http://ccsvibook.com/

I hope their is progress in the PD world as well.

Wishing you health and hope as well,

Melanie

peachybum 04/09/2012

Awww thank you for all being so nice to me. The link I posted is very current!! 2012 or at least late 2011. I'm not sure about the other links posted

Join the Conversation