Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Hi every one !
I'm really not one to post much but I can't take much more ! On to my ?
I've been in a flare up for 2 weeks now.I've not been DX'ed yet Only with IH
I've been having on , off sx for 4 yrs now kinda like RRMS Correct me if I'm wrong.I've done a lot of research and obsess over what causes so much pain !
I'm going to try and describe this the best I can ...
Last night as I was trying to fall asleep my body felt like it became detatch from my head,I know this sounds wierd,but I don't know how to tell it.It felt like cement , like my head and body , well 2 seperate pieces!
This is just one of many but yet a new sx I've not felt before and it scared the crap out of me ! It only lasted a few mins. stopped and then again for a few mins. and I think went away I fell asleep.... this comes after battleing migraine from the time I opened my eyes yesterday am...
I'm just curious has anyone felt this I know the rules,just looking for someone else who might have had this happen ????
This by far has been the worst flare up and each time they just keep getting worst then the last ....
Thanks ahead of time for your time !! XXX and best wishes to all !
I'm really not one to post much but I can't take much more ! On to my ?
I've been in a flare up for 2 weeks now.I've not been DX'ed yet Only with IH
I've been having on , off sx for 4 yrs now kinda like RRMS Correct me if I'm wrong.I've done a lot of research and obsess over what causes so much pain !
I'm going to try and describe this the best I can ...
Last night as I was trying to fall asleep my body felt like it became detatch from my head,I know this sounds wierd,but I don't know how to tell it.It felt like cement , like my head and body , well 2 seperate pieces!
This is just one of many but yet a new sx I've not felt before and it scared the crap out of me ! It only lasted a few mins. stopped and then again for a few mins. and I think went away I fell asleep.... this comes after battleing migraine from the time I opened my eyes yesterday am...
I'm just curious has anyone felt this I know the rules,just looking for someone else who might have had this happen ????
This by far has been the worst flare up and each time they just keep getting worst then the last ....
Thanks ahead of time for your time !! XXX and best wishes to all !
What you are going through is just awful. My first attack was so frightening. I couldn't move my legs in bed. Had to slide them off the bed then heave myself up.
The good news is that I can now get up without a second thought.
I have my first MRI that show my lessions the first time 4/5/2010 a MD said It could be the START of MS but did NOT DX me.Then another one was done due to my shunt 9/2010 ...
SO yes just have to get in with someone who can LISTEN and get and get on the right track a DX would be nice ...
I too have hd so many diff. crazy things go on most I just overlook,however this one scared the crap out of me not something I expected ....
Thanks Again !!! ANGIE