Multiple Sclerosis (MS) Support Group

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mjideas 05/05/2012

StevP recently posted about vitamins/supplements and asked what people are taking. As an addendum to Steve's post I wanted to share this web page I came across. This was from a conference in San Diego that both Dr. Zamboni and Dr Whals spoke at.

For those interested in CCSVI or the Whals protocol you may want to check this site out.

This link is to the Foundation's supplement page;

http://www.hubbardfoundation.org/CCSVI_supplements.html

Melanie

deleted_user 05/06/2012

Thank you! Awesome stuff!!!

lchoppel 05/06/2012

Thanks for the post! Helped me with my Alpha Lipoic Acid dosage. I was going to stop taking it, but now I'm not!

qazo 05/07/2012

Thanks for sharing, this is a very handy website!

Ichoppel seems many MSers are taking alpha lipoic acid, I might also jump on the band wagon.

lchoppel 05/07/2012

At a dosage of 1,000 mg of acetyl L-carnitine and 200 mg of alpha lipoic acid daily, a great number of people have regained most of the energy that they lost when the MS rollercoaster ride started.

However, it didn't work for me. Next I'm going to try 600 mg. of Malic Acid, 2x/day along with some magnesium. This combination is shown to help fatigue and reducing pain in Fibro patients and chronic fatigue syndrome, so it's worth a try!

EPagain 05/07/2012

Great info.

Many have known about low D3 in MS patients and a larger military study that showed D3 was lower before MS starts. Well the below study is aimed at finding out if taking D3 AFTER you have MS helps treat the disease.

if you want to stay on your standard CRAB med and want to add D3 under this study go to http://www.clinicaltrials.gov/ct2/results?term=Multiple+Sclerosis+and+Vitamin+D3
Then pick one of the green recruiting options to enroll.

Look forward to reading the results.
Best wishes to all,
EP

mjideas 05/07/2012

My Vit D levels since I began checking were:

01/24/2012 25 OH-VITD 41
09/16/2011 25 OH-VITD 23
03/16/2011 25 OH-VITD 24
04/23/2010 25 OH-VITD 34
01/22/2010 25 OH-VITD 18

I was taking 1000, then 2000 iu a day. My Levels continued to drop despite taking a 50,000 iu D supplement for a month 3 times during this period. I researched. Found some MS patients were taking 5000 iu and did so myself.

After 5 months I consulted my Supplement Dr. He had a blood test done to check levels and they were at 41.

In his email he said to me " Optimal levels likely begin at 32 ng mL; I always shoot for the 40's for anyone with MS; so, I think yours is acceptable and would continue your current level of daily supplementation"

So that is my experience.

Melanie

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