Yes! I'm trying to make this the reader digest version!!! :)

I have had to make several trips two towns up--to see new RA, new neuro & to have tests done!--& they take real tole on me when I have to spend my day going, being there all day & then coming back! I had told all of you that the 1st words out of this RA's mouth was "YOU HAVE MS! AND, YOU NEED A REALLY NEURO & REALLY FAMILY DOC BECAUSE YOU NEED TO BE TREATED FOR THIS! YOU MAY HAVE FM IN ADDITION TO IT, BUT IT IS MY OPINION THAT YOU HAVE MS!" And, that was very validating for me!!!

I totally needed that validation! It was good to finally have a good doc spout that right out immediately! Good to have more validation that it is not all in my head! To have a specialist, like an RA to say that immediately, & esp..... coming out of a doctor that acted so kind, & so compassionate & that really listened & gave a crap, it meant sooo very much!!!

Anyway!? I had to go back on the 9th to have all those tests done that he ordered, & again it took a whole day of prepration for me to get things done at the house & to get everything ready to go!And, then all day--by the time I got ready, ate, drove up there, did all the tests, & drove back! And, I had to leave early to take another one of my dogs to the vet, so I had to leave real early & go even further!

Anyway, I was totally shot, before I even made the trip & got the tests done & was beyond shot by the time I got back! I took a couple of other dogs with me that were in good health, & I went for a hike--mile & a half & it took an hour for me to do it! Pretty good considering!?

Anyway, by the time I got through with the walk my rt knee was out & I couldn't walk on it! And, as my dumb luck would have it I didn't have my fancy new cane! :) Well, so I had to hobble real bad in the bld to do all of my tests & had to do more walking than I cared to at that point! So, anyway, I started having real bad pain in my other foot too & by the time I got home my hips were spasing & hurting really badly, my knee was totally out, & my other foot was having real bad pain in it & I could barely walk on it! Ankle on that foot was hurting really badly too!

So I took some pain medicine & went to bed! Well, when I woke up the next morning I was in HELL!!! My hips were in severe pain & spasing out the wazoo! And, both legs were spasing all the way up & down & I had severe pain in both legs, & when I tried to get up & walk my legs didn't want to work at all! With all that spasing & pain I couldn't stand to do anything! But they were so weak I couldn't walk!

But I did have my cane at the house, so I got it, & was trying to walk best I could with it! But I needed more than just that one cane! And, then to make it even harder both my arms were spasing mildly & both my arms & hands were so weak that I could barely do anything with them or lift anything at all!

This is the first time I've woke up with both my arms & both my legs in this kind of shape all at the same time! I have had pain & spasms in my legs before, but almost never like this! I only had two times in my life that I was this bad, & maybe even worse & I almost did'nt make it because of the pain! I continued to have bad problems. It lasted for a week! But it slowly eased off after a few days! Was severe for about 3 days & then slowly eased off & went away by the 7th day!

So, I'm wanting to know if anybody else has had an MS EB that acts this way at all? I feel sure that I had an exacerbation--MS! And, I called my doc office crying like a baby & scared to death, & had to leave a voice mail for the next day! Then the nurse calls & ask me if I was having problems & when I tried to tell her what she cut me off, & told me that she'd call me later! Was real mean & nasty about the whole thing! She didn't even want to hear anything about it! Then, she never called me back! Just left me hangin!!! How horrible! She should have to go through something like that & then be left hanging like that!!!

So, anyway, I see the RA at 9 am Mon... morning to find out about my tests & about what he thinks about this episode that I had!?

I actually had a prelude to this one! Days before this my hips started hurting really badly & started spasing & causig me pain! Slowly got worse, & then BAM!!! I need a wheelchair! But didn't have one! It was terrible dragging around here & needing one or a scooter & not having one! This other nurse at his office--when I stopped by there in person, when I went to see my neuro--the other day said that he would do a script for a ROLLATER!? Do you all have one of those? And, does it help!?

And, by the way, I saw the new Neuro & he did not do a complete exam or anything, & basically brought up MS! He ask if anybody had told me that I had that? And, I said Yes that several docs had, including the new RA I just saw! He knows him & says that he's a great doc! And, very through!

But new Neuro basically said that it's FM, PCS, & most likely MS! But that he will not put MS on the paper until I see an MS specialists & they say that I have it & are willing to put it on their paper!!! Stupid!!! Says that he will not begin any MS treatment until I get an MS specialists to start the treatment! Said that if I do that he would be willing to continue treatment! But not til then! But will only put FM & PCS on paper! He sent a note to my RA & told him to order another MRI on me! So I'm going to find out Mon... if the RA is going to do that or not!? Talked like he was going to before, but wouldn't until he got all these other tests results back!?

And, while I was dragging my behind around on the cane practally laying my butt down everywhere I had to go, I saw this lady out & she came up & started talking to me--said that she has MS she's sure of too but that she is still struggling with the docs to get them to say it & put it on paper! Said that she's had the same problems with the docs here that I have had!

So that was validating too!

And, to sum things up!? I busted my bloomin knogin the other day real good & it shoved my head down into my neck & spine & caused a cascading effect! Something in my neck cracked when it did that & I've been in hell now with pain & spasing from that! But it's slowly getting some better!

Then today I did something to my rt arm, & messed it up real good & I've barely been able to use it since & it's hurting really badly & spasing real bad now!

Sorry I haven't been her much lately folks! I've been run to death with the new docs or specialists & all the tests & then that exacerbation thing from hell! But my thoughts have been with you guys anyway!

Love & peace to all! And, a HAPPY TG!!!!!!