Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
I saw my neurologist this week. He wants me to take BG 12. I kept asking why - it is for RRMS? I don't have relapses. 3 total in all the years with MS. All he kept say was it was safe -that's why he wanted me to take it. And he asked me 3 times if I was taking Vit. D
I showed him the abstract on the head to head comparison of BG12 with Protandim...funded by Biogen. He said called Biogen and they told him they knew nothing about it. I called Biogen and got nowhere.
If I had RRMS with lots of relapses I would take BG12. But I have SPMS.
He left me with a tidbit. There are trials in Europe on a drug called Lingo for remyelination.
Then I saw the Dr who heads up the hospitals alternative medicine clinic. He told me my neuro had sent him 2 other MS patient recently. And this Dr. had sent him info back about the extreme importance of vit D - I think something recently published in Neurology.
For more on Lingo here is 1 link with info. Hopefully 1 day there will be an answer.
http://multiple-sclerosis-research.blogspot.com/2011/07/anti-lingo-1-phase-1b-study.html
Melanie
I showed him the abstract on the head to head comparison of BG12 with Protandim...funded by Biogen. He said called Biogen and they told him they knew nothing about it. I called Biogen and got nowhere.
If I had RRMS with lots of relapses I would take BG12. But I have SPMS.
He left me with a tidbit. There are trials in Europe on a drug called Lingo for remyelination.
Then I saw the Dr who heads up the hospitals alternative medicine clinic. He told me my neuro had sent him 2 other MS patient recently. And this Dr. had sent him info back about the extreme importance of vit D - I think something recently published in Neurology.
For more on Lingo here is 1 link with info. Hopefully 1 day there will be an answer.
http://multiple-sclerosis-research.blogspot.com/2011/07/anti-lingo-1-phase-1b-study.html
Melanie
http://www.ncbi.nlm.nih.gov/pubmed/22367994
For Probiotics VSL #3 usually prescribed for colitis and IBS he said
For Multivitamin: ALIVE! (Nature's Way), or NOW
For MS: Alpha Lipoic Acid 600 mg daily
Melanie
The issue with probiotics is that if you take them orally you want refrigerated probiotics. Then take them AFTER you drink a LARGE glass of water between meals. This will dilute the stomach acid so more gets to where it needs to ALIVE. It is only the live bacteria that help you.
I actually do coffee enema and then afterward wait and hour and use 1 cup warm water with probiotics for another enema. It has been helping me quite a bit with my issues.
Low sugar diet (anti-candid diet) and antifungals can help too.
I agree with the Alpha lipoic acid (R-ALA) as this dosage. As it was used by Linus Pauling Institute in research on RA (a few years ago) and found to reduce inflammation at this dosage 3 times a week.
Again thanks for the post, YOU ROCK! ( :
http://www.clinicaltrials.gov/ct2/show/record/NCT01721161?term=biogen&spons=biogen&rank=6