Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
I don't usually complain about doctors or people telling me I "look good", but this kind of insulted me a little.
I saw my rheumy Friday for my osteoarthritis and fibro. We always bring up the MS since it seems to affect everything else. He told me I must have a relatively benign course of MS since I seem to be in pretty good shape. Ok.. I'm grateful that I am walking. But, he happened to see me on a somewhat good day. He isn't around for all the terrible. life-stopping days where I have constant pain, dizziness, fatigue etc etc.
This is always the way when you go see a doctor for a regular appointment. You're always in better shape that day so the doctor questions if you even have a disease. My neuro ( is an idiot ) but she has taken me off the meds because they are not doing any good any more. She is not very good with MS, but she does recognize some things as being hopeless. I've actually been in denial for 14 years. But then those days hit when there is no doubt.
I don't let the people around me get to me with their questions and suggestions. But when a doctor says something kind of insensitive it does bother me a little.
I saw my rheumy Friday for my osteoarthritis and fibro. We always bring up the MS since it seems to affect everything else. He told me I must have a relatively benign course of MS since I seem to be in pretty good shape. Ok.. I'm grateful that I am walking. But, he happened to see me on a somewhat good day. He isn't around for all the terrible. life-stopping days where I have constant pain, dizziness, fatigue etc etc.
This is always the way when you go see a doctor for a regular appointment. You're always in better shape that day so the doctor questions if you even have a disease. My neuro ( is an idiot ) but she has taken me off the meds because they are not doing any good any more. She is not very good with MS, but she does recognize some things as being hopeless. I've actually been in denial for 14 years. But then those days hit when there is no doubt.
I don't let the people around me get to me with their questions and suggestions. But when a doctor says something kind of insensitive it does bother me a little.
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Good day to all.So let me explain why we're discussing this today. The problem is, if your system gets too many (as in produces too many) it's a non-Hodgkin's Lymphoma (NHL) called Waldenstrom's Macroglobulinemia, and my husband was diagnosed in early 2018.Every monocloncal antibody or protein in your blood is essentially a blank, a slug, as they call coins that have been minted but not...
I try not to think about it too much when they do this, but it feels like a there are politely telling me to stop complaining. Very rude!
I wish doctors could learn to be more sympathetic to all of their patients.
He didn't say I looked good per say but said I looked better for weight lost. I have dropped 2-3 dress sizes which is great. Now down to 83 kg/13 stone as lost another few kgs.
My normal GP/Dr has commented I am looking better than I have years which I felt great to hear.
I am getting a lot of friends & others people telling me I look great/better than they have seen me in years. I am happy to take it as a compliment to my weight loss.
I get annoyed too esp on real bad ms days so I do tend to go "outside yes but inside Im struggling". It is one of the most common things said to people with ms & other neurological/hidden conditions.
It really depends on who says it, how they say it to how I react but you can't change other people's talk etc. I would not be impressed if was a Dr/Neuro who trivialised my medical issues/challenges & in those situations I would/have responded by correcting them. A comment I have often said to them is I look ok but thats because my symptoms are hidden today, you should know that.