Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Well I finally retired last Friday from work & not sad at all. Don't feel any different as been busy with appointments & things to sort out with our social services/centrelink re redundancy & payment when I retired. I was offered a redundancy package as my position was no longer available. I took it as I was going to retire at the end of the month as I was going to give notice anyway.
I am going to offer to do some volunteer work soon but got to try to get everything else done first including paper warfare.
I am lucky I am already on a disability pension so didnt have to go through that hassle of applying for it etc.
Thought i would share that I have finally given up the struggle of work even though it was part time.
First thing I have to do is try to get my foot fixed. I have got severe osteo-arthritis, sympathetic nerve dystrophy, & avascular necrosis/kohlers disease. A lot of this is caused by prolonged use of cortisone/prednisolone over the years for excema, asthma & then ms with the drip in one year was about 3 or 4 times & each year at least 1 or 2 over 3 days with the taper off tablets since 2005. I have been wearing a camboot/moon boot since November when I was in hospital overnight, then in hospital again for 5 days in January & kept getting sent to the wrong specialist or appt cancelled etc.
I finally saw the right specialist last week & he was not impressed that it has taken 6 months to see him as now the foot is a lot worse & he is not sure if he can fix it. I have to have ct scan & bone scan with dye on 31 May & see him again on 6 June which is when he is next at the hospital I see him at. I am not looking forward to it as if he does surgery it will be a complex reconstruction of foot & ankle.
To start with the pain was only from big toe up foot, now it is across foot at toes, toes don't touch the ground at all, & over the main part of foot & big toe is black (no circulation) & next toe is wasted away etc.
I walk on outside of foot as can't walk any other way so very painful to say least.
I just hope he can fix it for me so I can walk & not have such a high pain level as of course my ms is in overdrive with things playing up & migraines are common & I have had some real bad ones (not ms).
Please people be careful of how much cortisone/prednisolone you have as it can have lasting effects later on (& it doesn't wait that long).
At least I can rest up now & not have to worry about time off etc.
I am going to offer to do some volunteer work soon but got to try to get everything else done first including paper warfare.
I am lucky I am already on a disability pension so didnt have to go through that hassle of applying for it etc.
Thought i would share that I have finally given up the struggle of work even though it was part time.
First thing I have to do is try to get my foot fixed. I have got severe osteo-arthritis, sympathetic nerve dystrophy, & avascular necrosis/kohlers disease. A lot of this is caused by prolonged use of cortisone/prednisolone over the years for excema, asthma & then ms with the drip in one year was about 3 or 4 times & each year at least 1 or 2 over 3 days with the taper off tablets since 2005. I have been wearing a camboot/moon boot since November when I was in hospital overnight, then in hospital again for 5 days in January & kept getting sent to the wrong specialist or appt cancelled etc.
I finally saw the right specialist last week & he was not impressed that it has taken 6 months to see him as now the foot is a lot worse & he is not sure if he can fix it. I have to have ct scan & bone scan with dye on 31 May & see him again on 6 June which is when he is next at the hospital I see him at. I am not looking forward to it as if he does surgery it will be a complex reconstruction of foot & ankle.
To start with the pain was only from big toe up foot, now it is across foot at toes, toes don't touch the ground at all, & over the main part of foot & big toe is black (no circulation) & next toe is wasted away etc.
I walk on outside of foot as can't walk any other way so very painful to say least.
I just hope he can fix it for me so I can walk & not have such a high pain level as of course my ms is in overdrive with things playing up & migraines are common & I have had some real bad ones (not ms).
Please people be careful of how much cortisone/prednisolone you have as it can have lasting effects later on (& it doesn't wait that long).
At least I can rest up now & not have to worry about time off etc.
On your foot problems, I'm so sorry you have all that you have to deal with. Thanks for the warning on using steroids. They do wreck your body and you describe a perfect example of how, so thank you for that. I hope your MS settles down soon. Take care of you Sue!
I don't really feel retired yet as last week was so busy with forms & phone calls & we had a public holiday in the middle of the week then David had an rdo the following day so home part of the week too. It flew.
This week I have physio (hopefully) tues & thurs & do other things imbetween, have made a list of phone calls & what I need to dind up in paperwork etc & filing.
Take care of yourself too.