i keep a log. sort of like my baseline symptoms that i put a "" next do daily plus any new symptoms and what i was doing or how the weather was. i take that to the doc and we talk about it.

hope this helps.

I was using the NARCOMS study every 6 months to get track of myself. Unfortunately, I learned online here (with a big thanks to Alexana) that NARCOMS is corrupt so there is no need to give your info to their study since they just use it for their drug information.

But your doc should keep track of your disease. But their input is minimal. So I suggest you using your own notebook. It will really help you when you have days when you think that you are getting worse and then you look and see you haven't really changed much. So good luck whatever you do.

Thank you very much guys. Does anybody know where I could find the "Expanded Disability Status Scale (EDSS)" forms?

Try Here

http://www.nationalmssociety.org/for-professionals/researchers/clinical-study-measures/fss-and-edss/index.aspx