Multiple Sclerosis (MS) Support Group
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Hi all,
When I got my MRI results back the report stated that I had "a few small foci of T2 signal abnormality in the periventricular and subcortical white matter "SHOULD" represent old small vessel ischemic damage.....No mass lesion is present".
According to my doctor my hemoglobin count is always high and he believes it is because there is no oxygen going to my brain. Therefore in order to keep the red blood cells moving through the small vessels in my brain the hemoglobin tries to correct the matter by making more of itself. When it does this it creates a sludgey material and little pieces of capllaries break off and that is what caused the "foci" (another word for lesion...looked it up).
Well the article on hyperbolic oxygen therapy really hit me!! According to it MS brains have a lot of pressure and swelling and this decreases oxygen to the brain. Then it just goes on to tell how the therapy will work on this type of problem.
Well now I am left to wonder. Do I have these lesions because of the so called small vessel ischemia or do I have MS like I think I do because I dont know of any other disease process that causes MS hugs. And believe me those little suckers seem to like to be real chummy with me cuz they are always hugging me where my floating ribs are and also under my arms in the rib area right there.
The fact is I KNOW I have MS. The symptoms AND the signs are too in your face. My doctor just literally laughs off all my symptoms as probably coming from the horrible chemicals in my cigarettes. Yeah a lot of of people suffer total MS symptoms and signs from smoking. I have read a ton of reports on that. Not. I have decided I am going to make a copy of that report and do some research on the subject myself and gather up this material and see that MS specialist. If he does not want to see me i will just show up every day and sit in the lobby until he finally gives in and sees me.
My new mantra: I will not be used, I will not be abused; I will stand, and I will walk, TALL amongst them all.~~~~~~I am saying this all the time and I look in the mirror and say it a lot too. I am going to write it out a ton of times and even make a poster where I will look at it constantly. This really works guys because I have done it before. An ex boyfriend used to beat me and when I finally got away from him I developed this mantra: I will not feel anything for anyone. I said it all the time, wrote it down but did not do the poster. You know what? That mantra worked for me through 3 other boyfriends and lots of friends who just wanted to use me for my car and money. Then I got together with my husband and I literally broke down into tears for days because the mantra had finally been broken. I had fallen in love with my old friend and it only took one date to know this. I had feelings again!
Anyway, this is too long. I hope someone will read it though. I really need to make a mantra that says: I will not write long posts, emails or texts. Its definitely an idea!!! Be good to one another and know that all of you are in my thoughts and prayers. I hope this week is a semi-pain free one for all of you!! With love always, tamye
When I got my MRI results back the report stated that I had "a few small foci of T2 signal abnormality in the periventricular and subcortical white matter "SHOULD" represent old small vessel ischemic damage.....No mass lesion is present".
According to my doctor my hemoglobin count is always high and he believes it is because there is no oxygen going to my brain. Therefore in order to keep the red blood cells moving through the small vessels in my brain the hemoglobin tries to correct the matter by making more of itself. When it does this it creates a sludgey material and little pieces of capllaries break off and that is what caused the "foci" (another word for lesion...looked it up).
Well the article on hyperbolic oxygen therapy really hit me!! According to it MS brains have a lot of pressure and swelling and this decreases oxygen to the brain. Then it just goes on to tell how the therapy will work on this type of problem.
Well now I am left to wonder. Do I have these lesions because of the so called small vessel ischemia or do I have MS like I think I do because I dont know of any other disease process that causes MS hugs. And believe me those little suckers seem to like to be real chummy with me cuz they are always hugging me where my floating ribs are and also under my arms in the rib area right there.
The fact is I KNOW I have MS. The symptoms AND the signs are too in your face. My doctor just literally laughs off all my symptoms as probably coming from the horrible chemicals in my cigarettes. Yeah a lot of of people suffer total MS symptoms and signs from smoking. I have read a ton of reports on that. Not. I have decided I am going to make a copy of that report and do some research on the subject myself and gather up this material and see that MS specialist. If he does not want to see me i will just show up every day and sit in the lobby until he finally gives in and sees me.
My new mantra: I will not be used, I will not be abused; I will stand, and I will walk, TALL amongst them all.~~~~~~I am saying this all the time and I look in the mirror and say it a lot too. I am going to write it out a ton of times and even make a poster where I will look at it constantly. This really works guys because I have done it before. An ex boyfriend used to beat me and when I finally got away from him I developed this mantra: I will not feel anything for anyone. I said it all the time, wrote it down but did not do the poster. You know what? That mantra worked for me through 3 other boyfriends and lots of friends who just wanted to use me for my car and money. Then I got together with my husband and I literally broke down into tears for days because the mantra had finally been broken. I had fallen in love with my old friend and it only took one date to know this. I had feelings again!
Anyway, this is too long. I hope someone will read it though. I really need to make a mantra that says: I will not write long posts, emails or texts. Its definitely an idea!!! Be good to one another and know that all of you are in my thoughts and prayers. I hope this week is a semi-pain free one for all of you!! With love always, tamye
With my syrinx, I also get what I have heard described as the hug like feeling. From the different accounts, I would describe my "hugs" in a similar way as the MS hugs. I've been cleared for MS, though, because I don't have any lesions. I can't have the LP because of my Chiari so it's possible I have it (my MRIs were done without contrast) but so far all of my symptoms have been attributed to the syrinx and Chiari.
I do hope you get some answers soon. Hang in there!
Thank you for your replies. I am outta town on spring break vacation with my family. We are staying at my in laws ranch house. Its ok but the older I get the more I realize I would really really like to have a girly vacation.You know with burning black river stones laying on my back with a nice mud bath after and followed by some sorta naked body scrub with some nice crunchy apricot and almond shells then being tightly wrapped in some banana leaves and stuck for 30 minutes in a steamy sauna. Of course then would come the gourmet dinner of raw veggies shaped like a crown with a light drizzle of balsamic vinegar artfully drizzled around the crown, followed by a glass of room temp mineral water (better for the constitution than cold water). Then to bed at 8 pm sharp. Gotta wake up at 5 for yoga..
Ok sorry for the slip into fantasy land! Lol!! Any way I am beginning to to get tired of always boy vacations. I have a feeling that when the boys leave home my husband will still expect boy vacation for me and him.
I have to say that I have not found much on the oxygen therapy or the hemoglobin research..unfortunately. It does make sense to me though. There are many many times when my whole head feels swollen, basically the scalp feels tight yet at the same time I am able to pinch up part of my scalp in two fingers. Its a really gross feeling. Other times my scalp feels normal and I can't pinch up part of it. The time when it is gross feeling is when I have so much pain all over my scalp. It feels very sensitive and pins and needles. I can really see that it might be some kinda poor oxygen release issue.
I have found some really good articles that would probably give some good explanations about poor oxygen transport to the brain and the causes of MS. of course I know that this is not the main cause of MS but so much of it and the disease process itself is still shrouded in mystery. Like I have said before...and stand my ground on...maybe a little less to the pink and better distribution of research funding money and maybe wewill one day actually understand many of the misunderstood autoimmune diseases. I think that people in high places should start trying to get their minds and funds wrapped around the idea of research for autoimmune disease/disorders because from what I have seen and read on scientific documentaries and science journals is the thinly veiled theory that the extinction of humans will come about due to their flawed and/weakened immune systems. Seems are immune systems are sadly lacking. Therefore it just makes good sense to start investing more money on simply working on trying to figure out the humans immune systems. Of course I personally have had several very good friends die from AIDS we have had a close family member die of MS...(although he was already in his late 50s when dxed), my grandmas lil sis died of MS in the 30s...(the years not age).My step grandma had both her legs cut off above her knees, a little at a time due to diabetes, my other grandma had to give up her passion of painting cuz her fingers became stubby knarled crooked and forever bent to the side due to RA. My father in law had his life altered dramatically when he had to have several feet of his intestines removed due to crhones disease. My sweet friend Hailey has suffered from psiaritic RA since the age of 12., and has lived a very isolated and sheltered and pain filled life. I have another friend who has lupus. He would always want to go out and party with all of us but he usually couldn't...too exhausted or his face trash showing up too much and making him feel like a miserable loser...he was only 19 at this time, having been dxed at 17. I could go on and on....my aunt died from breast cancer and a good friend is an 8 year survivor. I don't know any other breast cancer people.
Anyway sorry to jump on the old band stand but daddy was an old hippy from the 60s and taught me to stand up for what I believe. Love you guys...irish
Its your crazy Irish friend who posted this.Long posts seem to be the specialty of myself and painted warrior. Even my replies are ridiculously long...had to quit journalism class in high school cuz I just love adjectives and run on sentences waaayyy toooo much! Lol!!! I think its interesting to note how you have inflammation and its like you have ADD. I seem to be the same way. When I am feeling ok my mind works better and when I get that gross scalp feeling suddenly I am back to forgetting and word finding issues again.
That is a very research topic.To me oxygen therapy sounds like it could be beneficial in many ways.I will drop you a line or two :-) when I find something out!!! Hope you hYr day is a grand one!!! Tamye I