Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
This community is a place where members can discuss current events and weigh in on what's going on in the world.
if nothing else, i suggest you see an opthamologist if you haven't recently
cheers
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Unfortunately it's almost always the MS. Like this morning for example. I woke up and was unable to open my left eye because the pain was so bad. It felt like someone had punched me in the eye except there is no swelling and no redness. Just pain. I had to hold a cold compress on it for 2 hours before I could even open it. It still hurts a lot and is painful to the touch but what confuses me is that I had an MRI done in February and my Neuro said that there was no sign of ON so what is this! It's been sore and watering all day and nothing I do or take makes it go away.
Also I experienced the weird sunburned skin feeling in the back of my left arm for weeks. No where else just my arm. Now it's dulled to the point that I actually can't really feel that area anymore.
It's so ridiculous and I feel like I am going crazy with all this. I hope that being able to talk to some people who know what I am going through will help. Here's hoping that tomorrow is better and I can open my eyes without pain.
Thanks =)
Good luck!
Kj
By the way: my attacks were preceded by a couple of days of eye pain. Mostly behind the eyes, but the eyeballs too: referred pain.
Call your Neuro and only your Neuro. Every other doctor is just delaying time. I assure you he/she will want to see you. Especially if you're on Gilenya(fingolimod), as one of it's rarer sides is retinal edema, or swelling.
Losing your sight sucks, I can attest. The optic nerve is very tender, and the sooner you can hit an ON attack with steroids, the lesser the damaging effects. At least rule it out, a doc visit is not the wrong answer here I think. Good luck, keep us updated!!
It could be optical neuritis. I've had several bouts with this and it can be permanent but I do not know how common it is for it to be permanent.
I have lost the sight in both eyes at different times. The first time it happened I experienced a partial recovery only. The second time it happened it was to the other eye and it has pretty much recovered.
I still have pain behind my eyes at times. This is the optic nerve no doubt. The pain can be horrific, I know that much (especially during an attack!).
There is nothing much they can do for this problem, that much I do know.
Please see an ophthalmologist to find out if you have problems.
I've had evoked potentials done by a neurologist. He did not believe I was blind in the eye I lost full sight in (the idiot!). He came back into the room after getting the sad results and began screaming at me, "My God! Your are BLIND! Do something about it now!". I remember I was sitting there and said to him what do you recommend? He said, well, try and herbalist or SOMETHING!
I have not gone back to this fool since losing the sight in my right eye and he did not even know who I was.
God help us!