Thank you very much. I think it is wonderful that maybe we can get past this. All posts are appreciated. I am a doubter of this treatment for a couple of reasons, but I do not in anyway wish to have even one person not consider or be encouraged by it. I read all posts, both pro and con. I think it is important to hear it all. I have great hope for great advances, I just do not like to feel that I am being run ovr by the latest train, that's all. I think that attitude is one of the most important things in dealing with this disease, but I also think that we cannot always interpret what attitude is best for others to have.

Again, thank you so much. I really like this board, and I hope that we can continue to help and learn from each other.

nikki

Ok we won't bury the hatchet in each other, this time. I agree I don't think going public was the best idea, a private message would have been better. I know I go after the idea of the liberation procedure because of that irrational exuberance and the glitzy name "liberation procedure" which implied to many that a person would not need meds ever again, the name isn't really an ethical name. I generally go upstream on things like this....I didn't get a mood ring until the fad was over.. I was not aware I was targeting you specifically, I was targeting the idea and this herd like behavior, similar to mass hysteria, in the positive but "mass something?" and all the newspaper account that were being as sensation as the enquirer at its worst. I'm not likely to change my ways about "mass whatever", so I'm not sure a private message would have worked anyway but their is an "ignore button" you can use so you do not see any of my replies. I have strong opinions, not always positive but I'm working on that, which quite a few don't agree with so I am absolutely positive I am on many peoples ignore list---that might be better than the public stuff. The ignore button works if you want to try it, especially while this liberation theory is still being processed. Many people I'm certain will be happy to see the hatchet was buried between us and not in each other. Snide remarks between members gets old after a while.

Friends, this treatment was in the news in a variety of areas. It's important to discuss no matter what.

Let's continue to be hopeful and consider the fact that some things work well on some of us and don't work on the rest.

The value here was in the open discussion, pros & cons, and I hope that does not change.

i wont be clicking the ignore button on you.You do have some very good and valid oints. I will keep in mind that you are opinionated and skeptical as you said, and i just hope you may be a little gentler with us pollyannas.

points not oints, oops

Just wait, when the lottery ticket number is read, read you could be thew winner & I could be the loser. No one knows yet. I spent this morning re-reading Dr. Zamboni's original trial report, they are just duplicating his trial to determine if it is repeatable. Dr. Zamboni did Doppler trials on MS patients and didn't report the #'s non CCSVI and healthy contols CCSVI.

He was only testing to see if angioplasty helped with MS...he never claimed it was a cure or that all MS people had CCSVI---that may have come from news sensationalism.

In Dr. Zamonies trial, he reconfirmed the CCVSI in MS people then did angioplasty on the order of the reconfirmed MS people with CCSVI.

So thats what the Buffalo trial should do next, to confirm that the CCSVI trial is repeatable. They just duplicated Dr. Zamboni's trial and release the #'s on non CCSVI & CCSVI.

Now the buffalo trial should reconfirm the people with MS and CCSVI after the reconfirmation start angioplasty without the stents that were used in LA. That's what should be next, proving its repeatable and the benefits are what was observed & reported in the 65 person trial.

We are still at the flip a coin part....when it is done you might be
the one with the correct idea.

I got into this with another person who was in limbo with what DMD she should go to next. The one she had used for more than 125 years did not appear to be doing the job. Tysabri was recommened but she just has a bad feeling about Tysabri. So when the liberation procedure came out she thought it solved her problem And me I have already invested much into Tysabri--probably the liberation procedure would not be too exciting for me with my investment in TY. For her the liberation thoery means a lot as a way of avoiding Ty or anything else less pleasant.

Two different motivation for how the liberation procedure is viewed...and a reason friction will happen until the answer is finally known. Flip a coin and don't get to upset about the friction...you might be right & I might be right.

No one knew if the colts were gonna win the superbowl or the saints until the game was done, but everyone had an opinion.

i agree mel--nothing was helping me--until i started taking natural alternative treatments that improve vascular healt---sherrya

a ms dr at vanderbilt just told me that they will pbly start a clinical trial on ms very soon --investigating ccsvi--seems to me that the really enquiring minds want to know--theirs are the opinions that really matter--the drs

doubting thomas--never proved anything

just asking..lynn what kind of medical degree do you own....

Thanks you for apologising, I dont like seeing people attack each other no matter what the discussion is.
I think it is important to discuss any new developments as we dont know which one will work for different people.
There are a few people having some tests done here & I know in one case after the test of the veins (or whatever they are) they have been able to find possible ways of alleviating some of her pain. That is a benefit even if its not a cure.
Who knows what will be found maybe as a deviation of this original theory too?

It was a tough week on the board here but in the end we are all dealing with something tough that brings up all kinds of emotions for all of us. The board is a place we can work them through. Thanks for going to the next step.

Concerning Zamboni's work, who knows? Even if it just works for some to any degree it is good. I have PPMS and the findings have no or very few positives for me but I hope for others it will work.

I don't hit the ignore on anyone because all deserve to be heard. Sometimes this is the only safe place to bring up our fears, our more humiliating issues, our anger. It isn't always comfortable, but neither is MS.

Lets keep supporting each other! Lets keep listening! Lets continue to be understanding.
Miki