Multiple Sclerosis (MS) Support Group

This community is a place where members can discuss current events and weigh in on what's going on in the world.

1,101 Members
21,517 Posts
0 Online
Brain & Nervous System
/ Multiple Sclerosis (MS) Support Group

Novantrone

Mike19054
Mike19054
Has anyone gone through the full course? I just had my fourth treatment and I'm ready to pack it in. I have not noticed any improvement with the first three. I'm tired of feeling so sick afterwards.

What says you?
deleted_user
deleted_user
Hi Mike, I only did 4 as well. I met my now husband before I had my fourth treatment of ground up smurf. I went ahead and had that one then quit because I wanted to have kids some day. 3 years and 7 miscarriages later I have a son, He's almost 2 now.

I was also tired of being sick and losing my hair. Good luck and do what's best for you!

Jaynie
deleted_user
deleted_user
Oh, my ms didn't improve or slow down at all either.
deleted_user
deleted_user
Does your Dr. plan to add Copaxone to the treatment? That is the plan with my Novantrone. I will do four treatment and then add copaxone, do one more treatment and then I am done.

My dr. has had 75 out of 100 stabilize or improve..
deleted_user
deleted_user
My doc told me that a person has 1 in 500 chances of having a fatal outcome from Novantrone & he's taken all of his patients off of it. I only had 2 treatments in 2005, then my heart MUGA showed I couldn't have anymore. It didn't help anyway & I felt terrible. I'm much better now on Tysabri.