Multiple Sclerosis (MS) Support Group

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/ Multiple Sclerosis (MS) Support Group

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meg40185
meg40185

I just had a MRI done to check on how Tecfidera is working for me, since my switch to it about a year ago.  I didn't have the best report...new lesions.  I have a follow-up appointment with my neuro on Tuesday, and I anticipate a change in medication once again.  I'm leaning towards Ocrevus and I'm scaring myself because I am absolutely terrified of the side effects.  


Can anyone give me some hope?  Positives?  Negatives?  I know we all handle medications differently but I need some reassurance.  



Love to all!  

lorrieonline
lorrieonline
I don't like side effects either but my neuro pa said there's another treatment coming out soon that may be better. I listened to an MS video conference over the weekend and there is another trial going on too. Hope you can keep your spirits up and find what will work best for you. Meanwhile, keep moving as much as you are comfortably able.

Hug for you.
hmmmingbird
hmmmingbird
I've been on Ocrevus since it became available and I absolutely love it. No side effects and keeps my symptoms from getting worse.
AnnetteKing57
AnnetteKing57
I just got DX with MS in February 2020 I am 57 . I am about to be taking Tecfiera. Can you tell me what it’s like ? Side effects if any ? They say -hot flashes. Stomach pain , nauseous, vomiting, etc... I have to say I’m scared . Could you give me any advice.? I so wish I could help you , but all this is new to me . Sometimes people want to tell you what they think you want to hear and not the truth. I need to hear from someone who has been through this. Prayers for you and your new medication I hope you will do well.
meg40185
meg40185
Annette - I really do love Tecfidera as far as side effects go. The only thing I experience is flushing/hot flashes, and a runny nose. Both don't last long at all. And funny thing is that my runny nose is only in my left nostril haha. But other than that, I have no complaints! I am hoping to stay on it and not have to switch medications. Prayers for you!! Just remember that MS is not a death sentence and it's very possible to live a full, wonderful life. Please let us know if you need anything!
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