Multiple Sclerosis (MS) Support Group

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Brain & Nervous System
/ Multiple Sclerosis (MS) Support Group

My home is my safe place

RiS
RiS

Just read this article and so can relate.  MS is a robber grabber! If I go out I have to deal with getting tired or if it's hot - forget it!  It's just easier to stay home, turn on the AC, and lie down in bed - REPEAT... Such is the story of my life!


lorrieonline
lorrieonline
I get those articles too. I get out there now and then to do things to "enjoy life" and usually there's some sort of hell to pay with having used up energy. I get it for me but what I find irritating is when someone else says it has to do with my "life choices." Of course my reply was, well, if I knew that racing in the Daytona 500 was going to render me dead by flying into a wall, yes, I would make the choice, not to race. Another friend wants me to try chemo. Well, when she has monthly treatment, she's not heard of for weeks! I feel your frustration. I really do want a cure that won't kill me. Wouldn't that be lovely? Big hug to you my friend. ♥☺
lchoppel
lchoppel
Well said Lorrie! Reading this post just validated me. I’ve had MS for years, and I’m always feeling guilty when my girlfriends want me to do something but I just don’t have the energy, can’t do walking, or like you, the heat wipes me out. If I had to shower, dress, put make up on, blow dry hair everyday I would have to rest after the shower. I feel my family doesn’t understand the level of exhaustion that hits, although they say they do. My friends have stopped calling me but say they understand each time I turn down their offers. I’ve become one of those anti-social people that all articles tell you to not to be. I think about joining a senior center to volunteer or participate but am afraid I would not make any commitments made. Heck, I gained “ the Y” just so I’d get out to swim daily, but have not gone once since I joined in March! MS sucks!
AcheyAkEy
AcheyAkEy
omg i hear ya buddy!

MS sux!

home is my sanctuary

MS has robbed me blind
turdbrain
turdbrain
god I really get ...or at least I used to. I no longer have my own home or sanctuary. my "husband" kicked me out. MS and my husband and his girlfriend have taken my life from me. crap
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