Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
My doctor has not told me whether I have rr or progressive MS. I have taken several MRI and they all confirm that I have MS. When I went to him to get my results of my last MRI he has lost the previous one so he compared them to the original ones but they had already told me on the previous ones that I had two lesions. When I went to my therapist she received my MRI results and she said that I had five lesions. He told me two new ones. I don't know for sure how many lesions I have. I ask what parts are the lesions affecting and he tells me all over. I'm having problems with him what should I do I am not satisfied with how he address my condition and he doesn't listen to how I feel or listen when I tell him this has changed in my body. Please help me. I'm frustrated and don't know what to ask and I am alone.
For some reason, some docs don't like to talk about the # of lesions. My first neuro simply said, "Does it really matter?" The way she said it made me feel like I had asked a dumb question.
My new neuro told me I have RR MS, at least that is what it looks like now. You can go to an MS website and look at the four types yourself. You will probably be able to determine which type you have from reading the descriptions of the four types. RR is the most common.
Regarding what parts of the body the lesions are affecting, your doc's answer was "all over"? Not a good answer! I'd ask again and ask specifically what parts of the body are likely to be the worst affected. If you still cannot get a satisfactory answer, this doc. is perhaps not the right person to treat MS.
Best of luck to you...
Please change Nero's I had to I see a MS specalist whom I adore he holds my hands at every visit and tells me that he knows that this is a scary thing to go through, he also spends about 1 hour at all my visits and I thank God for him, so please find a doctor that specilizes in MS go online or ask your Family Doc but if you have MS treatment should be given soon.
hope find a good Doc let me know
Laura O