hi there
Sorry to hear you are not feeling well. but you are not lost. when you think that you become that. it is very hard but stay positive and believe you will be well. Be well.

I am so sorry you have to deal with this :( My friends always tell me to stay positive but thats really easy for them to say when they are not the ones facing this stuff.... or I am always told by them to excersize and id feel better...
Hopefully this is just a relapse and soon you are back to yourself

Hate to say it, I know exactly how you feel! Not sure how long I will be mobile. I can't walk well at all without assistance. I just take it one day at a time, don't want to think too far ahead, scary :(

You're in my thoughts beautiful =] Hang in there!

I believe that the risks associated with Tysabri is worth the quality of life that I was given by it. I think the risks are something like 8 in 1,000? To me that is noise level risks, but everyone is different. Don't be afraid if that is your only option now. BG-12 is coming out this fall hopefully and that would be another option for you. Nothing says that taking Tysabri will enable you to walk any better remember. I was on Tysabri for 14 months, tested positive for the JC Virus and never wanted to stop it, but stop it I had to because of other health issues. I miss my Tysabri infusions and don't want to go back to any shots or deal with Gillenya side affects. Maybe you can wait a few months for the release of BG-12? Maybe that is something to discuss with your doctor? Ampyra might also help you with your walking. I tried it, and couldn't take it. It caused me great pain. I stopped it and restarted it just to make sure it was the Ampyra causing the pain, and sure enough it was. I wish you luck with that med. Alot of people have had success with it.

Don't be discouraged. I know you are young and you've been given a blow by your doctor telling you that your MS is progressing. My heart goes out to you Rican, but I know that you have the strength in you to surpass this set-back. You are a strong, vibrant woman that can handle anything God chooses to deal you.

Hi, Jackie, a year ago I was in bed for three weeks ,then wc, my Dr said,with spinal lessions I should not expect any improvement, I said, I know, ok,,,he gave me D-2, iron, vit C, and I go to pt or do them at home, I'm walking with a walker, or cane, scooter on stores, but I'm doing a lot more than a year ago.
Dr knows medicine, but you know your body and how and what to do to keep walking longer. At least I try everyday, if I have a down day, I embrace it, give in, rest all day, but even that day I try to keep up with exercise, from bed.

Hope Dr is wrong, Alma

I kinda know what you mean about about the muscles in rebellion; Mine seem to just give up working for me after minuetes! 2 or maybe 5 minuets of standing and I have ta rest. It's sooo depressing; I'm sorry.
I do not want to need my crutches everyday and insisted to my neuro to have me try Ampyra; It seemed to actually help me walk withOUT the crutches after just 5 days!! Maybe it will work well for you.
The pains it caused me were just unbearable so I stopped after 13 days. I'm goin to ask him about it again with a different/lower doesage when I see him again in about 2 weeks and I'm thinkin he's just gonna tell me the same thing; it's just getting worse for me!

But really, it completely sucks, but it is what life is for us. Maybe that BG-12 will be a better option for alot of us young MSers too. I feel lost too aLOT of the time.

Tysabri is one answer. I couldn't take it because I am allergic to it. I got the hives really bad within 15 minutes of the shot. I had to go the emergency room, but I am in the minority there.

I just started Amprya and can't say that it works. I am told to give it 60 days but its side effects include dizziness, balance problems, etc., the same problems I have with MS so I wonder. I tried 4AP and it is the same and I got the tingling feeling. Since Ampry gives us a 60 day free trial, you nothing to lose so you can always try it and see.

My doctor says that BG-12 is no better than interferon but who knows until we try.

I say that eating a great healthy diet is one key to success. Try to eat as healthy a diet, organic vegetables, limited meat, vitamin D supplements, Evening Primrose Oil and Fish oil Omega 3 supplements. NO PROCESS FOODS. THAT IS A REAL PROBLEM.

Some people improve with steroids but then there is the side effects. You have to look at all the options with you doctor and see what you think is best for you.

Best of luck.

I'm no Dr. or anything but I have been taking Tysabri for years now and let me tell you, IT WORKS! I go to the Doctors building right next to Clara Maas hospital in Belleville. It's a Chemo treatment office and they give Tysabri infusions too. It's expensive but insurance pays for it. I saw the bill once and it's like 3000 bucks a month. Thank God for insurance. If you can get Tysabri.........try it. When I 1st started it, it actually helped me walk better. It helped me feel better. That's only at the very begining though. Now it doesnt help me "feel" and walk better but it certainly has slowed the progression down bigtime, to a slow-crawl. I love my Ty!

I'm so sorry you're feeling so down and out but please let me say... try not to think negative..A little over a month ago, I thought I was going to end up in a wheelchair soon and convinced I was much worse. I couldn't walk well, horrible balance issues severe numbness,bladder problems, twitches, and weakness. My doctor mentioned spinal lesions but didn't go into detail or do a MRI ... (I've been clear except for a few tiny spots on my brain) so I was shocked when he mentioned "spinal lesions" I took a month of steroids that helped a lot! I also found out the foods I'm allergic to and changed my diet! The MS symptoms have all but disappeared and I can tolerate the heat longer now without the weakness and noodle legs.. I truly believe the "diet" part of this has helped the most. Found out (@ age 33??---wtf?) I'm highly allergic to cows milk and eggs-- and mildly allergic to wheat, tomatos and potatoes... I can't tell you how much better I feel.. if I didn't have the stress of worrying about what to eat- I'd be like a new person... All of that said.... I want you to think positive-- I was right where you are now-- and now I'm stronger and feel as if the MS is under the rug for now... Chin up !!! Hugs...
Stac'