Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Hi all,
I have been lately getting all kinds of symptoms at one time. They just keep coming. My eye thing is much much worse, sometimes happening at least twice a day. Headaches have come back. Now I am beginning to experience that bladder problem where you suddenly feel an extremely urgent need to go and usually I will go a little right before I make it to the bathroom. My hand tremors have become much worse, often so bad it is getting hard to hold things. Muscles aching more and my arches on my feet are contracting constantly and this is downright mean because they are already falling and they dont need any other help!
Of course the TN is really hurting alot also, That comes and goes ffor me. But mostly its been staying round. I have been having medium strength MS hugs. I tried the "walking the straight line" business that the neuro will have me do and that was a joke (very surprised because I used to be able to run on a parallel beam!) I did a coupla other tests were I stretched out my arms in front of me and closed my eyes and stood still. I immediately started swaying back and forth and felt like I was going to crash on the ground! I did the holdingyour arms out at your sides , closing mty eyes, and trying to touch my nose several times witth each finger. The right side was right as rain. The left side got my mouth several times in a row and never even came near my nose.
So guys what do you think about this sudden flurry of activity? What about my tests I did myself? Any thoughts, or input would be greatly appreciated
I have been lately getting all kinds of symptoms at one time. They just keep coming. My eye thing is much much worse, sometimes happening at least twice a day. Headaches have come back. Now I am beginning to experience that bladder problem where you suddenly feel an extremely urgent need to go and usually I will go a little right before I make it to the bathroom. My hand tremors have become much worse, often so bad it is getting hard to hold things. Muscles aching more and my arches on my feet are contracting constantly and this is downright mean because they are already falling and they dont need any other help!
Of course the TN is really hurting alot also, That comes and goes ffor me. But mostly its been staying round. I have been having medium strength MS hugs. I tried the "walking the straight line" business that the neuro will have me do and that was a joke (very surprised because I used to be able to run on a parallel beam!) I did a coupla other tests were I stretched out my arms in front of me and closed my eyes and stood still. I immediately started swaying back and forth and felt like I was going to crash on the ground! I did the holdingyour arms out at your sides , closing mty eyes, and trying to touch my nose several times witth each finger. The right side was right as rain. The left side got my mouth several times in a row and never even came near my nose.
So guys what do you think about this sudden flurry of activity? What about my tests I did myself? Any thoughts, or input would be greatly appreciated
Feel better
Melanie
Thank you for your replies. I am seeing my regular doc on Tues or wed. (have to check date book) and I have an extended visit with him. I am currently writing down every single symptom I have/had that is associated with MS or even perhaps another neurological problem that has MS signs and symptoms. I am being very thorough. Every place I find something I reference it. Right now I am reading a book by Julie Stanowich called Multiple Sclerosis Manifesto. She is the guide at About.com for MS. I have not been over there to check out what is going on there. However I do know about the site and their guides are very knowledgeble. She has a Ph.D so I think what she has to say is reliable plus she has had MS for several years.
I also plan to use several web sites where I found information that highlights MS symptoms/signs that are exactly what I am currently and or previously demonstrated. I plan to write out long hand all this info. I will then print out the supporting materials. I will place all of this along with information about my current diagnosises of a past EBV that, after 6 years still has high enough numbers to make it a threat to my health especially when the chronic cytomegalovirus I have been diagnosed with pops up. Apparently these two viruses like to "come out and play together"--words of one of my doctors. With these different diagnosis I am also writing down the doctors name and where he works and the web site and phone number. I am approaching this whole thing like I would a major research paper I would have to do in college. I want nothing but a big fat A+ and figure the best way to achieve that is to do everything properly and leave nothing out.
Melanie,****I have read many of your responses, not only to me but to other friends here as well. I am always impressed with your warmness and caring. I am also always awed by the wisdom and practical advice you impart to our friends here. Having said that I am now wondering what I should do. This morning I woke up at 5:30, I went outside and smoked and drank some tea. I then went on here. I believe I answered some friends that had replied to a previous post I had made, I replied to a couple of other friends who were worried and asking questions and then I posted the above. I started writing it about 7:00 and as you can see it was 9:54 am when I finished it. This was because my eyes were almost basically closed and would flutter open only for a bit. I was writing most of the above with my eyes shut and only did a decent job because I have been typing all my life. So I basically was experiencing the eye thing for over 4 hours. I went to sleep again and woke up at 11:30. I got up and after 10 minutes my eyes were at it again. I tried to ignore them but after another 30 minutes I just gave up and went back to bed. I pretty much stayed in bed all day because my eyes never really wanted to act normal again. My mom called and had no comment on the eye thing. Her only comment was, "Don't you think all this sleeping is going to mess up your sleep tonight?" I think she just wants to be in denial for awhile.
*****So anyway, through this longwinded conversation I am having with you my question is this: Do you think I should see someone at the ER? I have never been diagnosed with MS but I do have Mixed Connective Tissue Disease, Sjogrens, Reynauds, IBS, several chronic herpes viruses, chronic cytomegalovirus, chronic sinusitis, a head injury from 2005 (fell on face on concrete while running) and a severe head injury in 2011 (fell on back of head -- 3 docs said I am lucky to be alive) where I fell backwards and hit the back of my head in the concave area, then my head bounced and I hit the left side of my face/head pretty hard and then my head bounced back again and hit the same spot twice. Rushed to ER due to more than 30 seconds of unconsciousness and had 3 staples put in my scalp and had a CT scan that they said was fine (told me I had a beautiful brain :-)....). Since then several people have told me that i should have had a follow up CT or preferably an MRI. the school where it happened never once showed any interest in how i was doing afterwards. when i came back a week later they barely acknowledged i was gone. i was almost treated as a poor leper would have once been trteated. i have been thinking of sueing them (this is usually something my family frowns on, but surprisingly all are behind the idea due to schools response to it and most importantly because the reason i fell backwards is my shoe got caught in a wide chunk of broken concrete) My dilemma with all this is that I had this accident on Feb. 16th. That is only 4 days away from now...making it one year and then it will be to late to sue. I know that something is going on and it has become much worse this past year since I fell. My doc appt. is on the 14th and who knows when he can get me an MRI and then they have to be read, and if it is unclear they have to do a lumbar puncture. I am concerned about the costs of the tests and then the possible expense of meds. Not to mention the fact that I will probably not be able to work in the field of medical assistant----I was being trained at the school where this happened and the 9 month education cost me $16,000. I am sure their lawyers told them to not say anything to me or acknowledge in any way that they had anything to do with it by doing something as simple as saying, "Im so sorry you fell and hit your head at school.". The fools never realize that if their clients showed a little more compassion probably half the lawsuits would never come about in the first place!
So what do I do guys? You 3 are my sounding board. I am totally clueless. All I know is that the idea of sueing is extremely embarrassing to me. But I do know that my family will suffer immensely and actually already has been suffering immensely due to whatever has been going on with me. If it can be proven that because of the head injury my MS was forced front and center and is and will be causing me disability then I think it is right to have them compensate. I just feel bad because our family does not sue. It is ingrained in us. But they all seem to be behind me on this. I am confused PLEASE HELP ME GUYS!!!! THANK YOU FROM THE BOTTOM OF MY HEART!!! Irish