Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
This community is a place where members can discuss current events and weigh in on what's going on in the world.
i do think the doc should try to find out what's happening and if he can't, that second opinion might be the answer. even if this is a longterm difficulty you'll have to handle, you have the right to know.
cheers
Maybe try some AquaTherapy Crystal? I was sent for Aqua PT when I was in Montana...really did seem to help a bunch, as I was an awful mess then! I always get into the water every chance I get...& "recall" my water aerobic exercises. Seems so much less "stressful" on my joints/muscles than regular exercise. I can always tell a big difference in my spasticity! It was last summer since I've gotten to do any water exercise...& it shows! The last 3 times I've tried "regular" exercise...I was ready for a trip to the ER!!
Do you live near a YMCA or a workout center with a therapy pool by any chance?? I do...but have yet to join...sure needing to! Many of them offer "water aerobic" classes...some are even specifically called "Fibromyalgia water aerobics." (I think these are even less stressful). Hope this helps dear...stay sane if possible! I'm right there with ya! ;)
~tj
~tj
My limp is always there now although it's worse first thing in the morning, at night time, and it's really bad if I over do it during the day. I think I had two different issues at the same time during my flare. The first was like a rhythmic muscle twitching thing that happened in any muscle group (back, leg, foot, hand, anywhere). The other issue was horrible muscle contractions that effected my right hip all the way down. The muscles would contract hard enough that it pulled things out of place. Neither of those things are happening now I've just been left with a limp.
I don't think my insurance would cover aqua therapy which stinks because swimming is one of the few times where I feel like I can move "right". The landlord I rent from does have a pool that I can use when it opens in the summer though. I used it last summer and it was wonderful.
This neurologist is my second one (the first one said my spasms were pseudoseizures which has since been disproven). He did give me an MRI with contrast when I first came to his office about a year ago. When it came up negative he declared that I definitely can't have MS (which is irritating because I know that isn't necessarily true but for now they couldn't find anything). It doesn't seem likely that he will have me go for another one. He hasn't made any suggestions for a diagnosis or treatment other than the Botox which I didn't take him up on. I think you guys may be right and I may need to go get a third opinion. Sigh. Let the search for a decent neuro begin again!
I love that I can put up a symptom and see if anyone else is having the same issue. You are all so helpful, thank you all for your comments! :-)