Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
So, I was diagnosed as secondary progressive in March of this year.....only 5 years after being diagnosed as relapsing remitting and being on 3 CRABs drugs for the entire 5 years. From what I've read - and I know it is different for everyone - but that is kind of a quick progression. Especially because my presenting symptoms were few and far between and they were all sensory, ie optic neuritis, temporary slight deafness in one ear and vertigo. Then one day - out of the blue - I wake up and I can't walk. Any way, all this is besides the point - except to explain how I came to be on LDN. So, I've been on 3 mg of LDN for 3 months now. And I feel good.... I'm not sure if I feel good because of the LDN or just because I am not shooting poison into my body anymore....or maybe it's both. So, I read that a side effect of LDN is leg stiffness - which I definitely have......but is this something that should subside in time? Also, I am waiting on my prescription of Ampyra....anybody have positive results with LDN and Ampyra?
Art, from the LDN yahoo group, is on 4AP, which is the $25 dollar version of the pre $1206 version days, and LDN. He's doing quite well.
When I first started I Just dealt with leg stiffness. Then in 2005 I was going camping and started taking B1 100 MG to help with mosquitos.
14 days on the B1 my legs suddenly felt different/better, so I didn't stop the B1. In 2007 I ran out and didn't buy more, within a few days my legs got stiffer again, so I bought more and take it every day with my LDN.
Every 3rd day I take a Super B Complex 100, instead of just a B1.
I also couldn't find B1 100 so I bought a bottle of B1 250s, didn't notice any differences so I stay with the 100s.
http://www.dailystrength.org/groups/ldn is the LDN group here