Multiple Sclerosis (MS) Support Group

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marilyn4342 07/02/2012

As of late, my muscle in my right leg has started to spasm (sp?) and it is painful to stand. Forget about walking! My leg draws up if I am standing and holding on to something. It hurts so bad I want to cry! After a few minutes it stops until I go from sitting or laying down and trying to get up.
The pain is in my thigh, no where else.

Any ideas what this is or What causes it? I know that we are not Health Professionals, but we MS'ers seem to experience and deal with more symptoms, and or side effects that the Doctors have been exposed to.

deleted_user 07/02/2012

I'm so sorry you are going through this =( I've been wanting to ask this question for a while. Guess I just been hoping it'll pass..and it has not =\ My pain started left leg behind my knee. ( Outside of leg above calve) Then it started cramping down, then shooting up =\ Hips and outer thighs wake me up a lot..DEEP aches as well as shooting pains. Now it's both legs cramping up, entire legs, and right side of back from middle of rib cage down. Is your pain/spasm in your inner thigh? Out thigh? I am very well hydrated ( love water) and take magnesium. I have Baclofen and Flexeril as well as pain meds and nothing has helped. Been debating on calling Dr. all day. Electrolytes are fine as I have labs done every 6 weeks. Have you checked/ kept an eye on these things? Sorry to ramble, I always have a point somewhere =) You aren't alone and I hope it passes soon~ Heidi

deleted_user 07/02/2012

Muscle spasms are pretty common in MS (and many other conditions). I take a combination of Baclofen and Zanaflex for this. The baclofen honestly doesn't seem to help much but the zanaflex works pretty good. I would definitely schedule something with your doc as it could indicate a flare and meds can really help.

marilyn4342 07/02/2012

Thank you Heidi and Shelly for your responses. My pain is in the middle of my thigh, not the inside or outside.I don't believe it is a flare or an exacerbation. I have had MS for 30 years and I haven't had flares for years. I just keep continually going down hill. My doctor agrees with me. I will call and make an appointment.

My husband thinks every pain is due to a lack of exercise. I can not convince him otherwise. Neither can the doctor. Oh well! C'est la vie!

deleted_user 07/02/2012

I take Baclofen for mine

Orsova 07/02/2012

Even though we assume that MS is responsible for many things that we encounter, I feel that we are inclined to blame MS when there might be something else.

If your pain is only on one side it could be to do with a referred nerve problem - like the sciatic nerve or it could be a foot problem. For feet, a podiatrist might help, for the other a good chiropracter may be the go.

I'm only drawing on my own experiences here - you can only keep trying until you get an answer or hopefully, relief.

deleted_user 07/02/2012

I've had this off and on randomly. It comes and goes. It's like the tendons are too short behind my knee and up my thigh. It's difficult to walk b/c the leg doesn't wanna bend and move. Valium does help me but I think it's just part of it.. like the twitches, aches, pains, and leg pains that come on suddenly and can leave just the same. I hope you feel better soon.

almairis 07/02/2012

Hi
It's terrible! At the beginning I didn't know what to do, now I do flex and point, first it hurts a lot but continue. Because it lets go, it feels like a pop,,,then ahhh relief!!!

Alma

marilyn4342 07/02/2012

Thanks for all of your wonderful responses!

Orsova 07/02/2012

Any severe pain, especially behind the knee, and difficulty bending your knee can be attributable to blood clots, so do be careful!

marilyn4342 07/02/2012

Thank you for the information Orsova, but my pain isn't behind my knee. It is in the middle to the outside of my thigh! Can it still be a blood clot?

Orsova 07/03/2012

I really don't know! My blood clot was dx from an ultrasound. The pain was awful and indirectly due to MS at the time as I was doing no exercise. Thankfully it has been dealt with but I have heard of others with MS who suffer from clots. The doctor hopefully will investigate.

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