What are dmd's? Im still waiting for a dx...

Disease modifying drugs like rebid, avonex ect.

It's a bitter/sweet ting to be finally dx'd isn't it?? It took 3 yrs for me to be dx'd. I live in the UK, so treatments may vary, but I take pain killers, anti-inflammatory, anti-spasmodic and anti-vertigo., Plus some toher meds for other conditions. I don't think any of my meds are dmds.
My Hubby was as relieved as I was to finally put a name to this illness, but it took a while for it to actually sink in for him. My Son was practical about it, but my Daughter went round for 2 weeks thinking I was gonna drop dead at any moment!! She finally sat still long enough for me to explain to her what MS was and what it could do, but left out the worst bits. It took her a few years to even be able to talk about MS with me, but she got there in the end.

Now that you have a dx of ms, you're probably trying to figure out what happens next. That's a good question because one of the major challenges is how unpredictable MS can be. At this point y ou may be experiencing one or more uncomfortable or annoying symptoms, or the symptoms that led to your dx may have all but disappeared. Either way, you now have to deal with the fact that MS is part of your life, and no two people deal with it exactly the same way.

I'm sorry you had to join this club, but you have found the right place to come for support and advice. The first thing you need to do i sort out your feelings. Everyone's initial reaction to geting an MS dx is going to be different. Whatever you're experiencing, whether it's shock, denial, anxiety, anger or even relief, keep in mind that these reactions are normal and that you and those who care abut you are going to reexperience some variation of them whenever MS brings new symptoms and challenges into your life.

Catch your breath before making any major changes or decisions. People dxed with MS may do a surprising number of things during their first moments of shock - quit jobs, leave relationships, take to their beds, tell the world about the dx, decide never to have children, and so on. Considered yourself forewarned, you need to give yourself time to explore the disease and live with its ups an downs b efore deciding to change your life. You may be surprised to discover that you really don't have to change things at all.

In my opinion, I can't emphasize enough how important it is to consider early tratment with one of the approved dmd's before significant, irreparable damage can occur. Discuss the subject with your neuro as soon as possible.

Begin talking about MS with the people in your life. In general, sharing information with y our partner, your best friend, your parents, whomever you feel closest to, is the place to start. Those closest to you-people who know you well enough to sense when something is wrong even without you telling them-can help you begin the processing of living with MS. In turn, you can help them understand what the disease is all about.

Get a good book to start understanding it all yourself. I purchased used MS for Dummies and still use it to this day as a reference book. The National MS Society and The Multiple Sclerosis Association of America is another good resource to tap.

Most of all, remember that DS is not a death sentence. There is a lot to learn about the disease but I've gone on long enough. Welcome to our family.