Multiple Sclerosis (MS) Support Group
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I checked into the ER on 9/1/12, I thought I was having a stroke...having paroxysmal seizures on my left side. I was checked into the hospital, and the next morning the Dr told me my MRI showed lesions, It could be MS, I was so scared my cousin just died a couple a months ago and she had MS for about 30 years. I referred to a neuro dr. He ordered MRI on head, neck and spine. Spinal tap and EEG. All done the next week. Results in the following week. He told me I had 2 lesions in my neck and bands in my spinal fluid with low c cell count. He was surprise it had never been suggested since I had bell palsey's in my 20's plus facial ticks thru out my 30's. Offically dx on 9/25/12 with RRMS....fast hum!! At the age of 43!!
Now since the 1st seizure attack I had on 9-1, I have had body acnes, head acnes, and several seizures. I'm very fatigue...all in a month. MS feel very real to me...but people close to me say..I't all in your head...I want to say Dud!! I have 7 lesions in my head!! Can MS hit this fast? Or is it in my head since I'll been dx...It surely feels real everyday now.
P.S. I hate the meds too..carbatrol and betaseron
Now since the 1st seizure attack I had on 9-1, I have had body acnes, head acnes, and several seizures. I'm very fatigue...all in a month. MS feel very real to me...but people close to me say..I't all in your head...I want to say Dud!! I have 7 lesions in my head!! Can MS hit this fast? Or is it in my head since I'll been dx...It surely feels real everyday now.
P.S. I hate the meds too..carbatrol and betaseron
Two years later, in October, 2007. I had numbness, loss of strength, double vision, light headedness, plus the seizures were back. Four days again in the same hospital, they diagnosed another mini stroke. They relaeased me but my symtoms kept getting worse. My PCP had me admitted to a neurological hospital and that's where, after one day, I was diagnosed with MS.
So, a name at last for the seizures I had. Paroxysmal seizures! Thank you so much!
Yes, its all in your head,, and you got the mri to prove it,,, and also in your spinal cord, which I believe is where the seizures come from, because a friend of mine started hers when she developed the spinal lesions.
You have a lot of lesions, probably a lot of symptoms too. Read MS FOR DUMMIES, and get another copy to pass around to family. Nobody will ever understand but the minimum they can do is respect you and your new challenges.
Alma
BUT here is my take on why your symptoms have increased, something I've noticed from others here, through research and personal experience.
Many of us tend to 'ignore' our bodies. We ache and we push forward anyway, we twitch somewhere and say 'Hmmm, no biggie', our vision is a little blurry and we say 'Must have something in my eye' etc... you get my point. These symptoms have been around for awhile, but we have become masters at ignoring them. Once a diagnosis comes to light (or a suggested one in my case) we start paying more attention to our bodies and start noticing these things.
If you had asked me 2 years ago how I was feeling I would have said GREAT!!! But something a loved one pointed out to me is that I've not been myself and they could tell I had not been feeling well for years... I had just become a master at ignoring those symptoms.
Lots of (((hugs))) to you.
Lisa
Lisa its so right,, we ignore and make excuses for our limits,, the big difference after dx is that we know what we can or not do to make ourselves worst,, also ms is progressive so some people do it slowly and some go fast. In the last twelve years I had problems with balance, got a cane and kept on walking..when I had my last flare and couldn't walk,, I was asking my daughter why I had a cane at home,,,, I couldn't remember having that problem before,,,,, think about yours,,
Alma
Get on a MS drug modifier that works for you. The meds can only "slow progression" at this point but, a believe a multi layered cure is on the way in the next 5 years! Multi-layered is needed because there are so many varieties of MS. One cure might not work for everyone!
Go to my support group website msinvincibles.org It's loaded with useful MS information.
We are here if you need us! Lots of knowledge experience with our illness
They told my father he had the flu when he had cancer. He had to go back several times before they believed him. Unfortunately, the cancer had spread more by the time they figured it out. So don't take no for an answer.
I have also heard doctors say "go see a psychiatrist" if they don't believe you have MS. I met someone recently who had obvious MS symptoms and her neurologist told her she didn't have it and to go see a psychiatrist because it was all in her head. What a joke. They say that when they don't know what you got. Don't listen to them and keep on searching until you get the right doctor.