Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Hello folks,
I just had an MRA of my head done( this was with contrast). As is my nature, I immediately requested a copy on cd so I could go home and study it for myself. Since I requested my copy on the same day, just moments after having done, the report from the radiologist had not been done yet.
Anyways, I take it home and pop it into my laptop, and then pull up images of MRA's on my other computer so that I can compare in order to understand what is normal and what would not be considered normal.
Long story short, my MRA looks almost identical to those with occlusion of the basilar artery. Following is my web site for you to view:
https://sites.google.com/site/mramricomparison/
Anyways, today I had an appointment with an Ear, Nose and Throat specialist to see if he could figure out if my vertigo was coming from an inner ear problem. I mentioned to him that I had an MRA done on Sept. 30th and that maybe that could shed some light on the problem. I was very interested in hearing what he might tell me since the doctor who ordered it had not contacted me yet with results. So he to told me he would go and look at my MRA results and be right back.
When the ENT doctor came back he asked me if I had seen a Neurologist. I told him I had. Then he asked me what he had said, so I told he that the neuro had told me that there was nothing wrong with my nervous system. He then said solemnly that he was going to refer me back to my neuro because there appears to be some thinning of the nerves in my brain and that a neur would better be able to explain what was going on. I was not completely surprised buy this because as I'd mentioned earier I had examined the MRA myself and noted the difference in mine compared the pictured posted as normal on the web.
OK. This did not unset me. But what did upset me is that after a saw the ENT specialist, I walked over to the imaging lab and requested a copy of the radiologist's report for my MRA, and it said it was normal. I was so upset and confused. I still am. Every test I have had at this hospital comes back as normal. Now I have had one MRI showing white spots, which my neuro told me to forget about, and now, 6 months later I have another MRI, plus an MRA that show white spots and abnormalities in my "Circle of Willis, and it is not acknowledged by the radiologist! What the heck is going on.
Can anyone give me a logical explanation for this strangeness? I am really starting to think there is a conspiracy going on.
But really, what could this be?
I just had an MRA of my head done( this was with contrast). As is my nature, I immediately requested a copy on cd so I could go home and study it for myself. Since I requested my copy on the same day, just moments after having done, the report from the radiologist had not been done yet.
Anyways, I take it home and pop it into my laptop, and then pull up images of MRA's on my other computer so that I can compare in order to understand what is normal and what would not be considered normal.
Long story short, my MRA looks almost identical to those with occlusion of the basilar artery. Following is my web site for you to view:
https://sites.google.com/site/mramricomparison/
Anyways, today I had an appointment with an Ear, Nose and Throat specialist to see if he could figure out if my vertigo was coming from an inner ear problem. I mentioned to him that I had an MRA done on Sept. 30th and that maybe that could shed some light on the problem. I was very interested in hearing what he might tell me since the doctor who ordered it had not contacted me yet with results. So he to told me he would go and look at my MRA results and be right back.
When the ENT doctor came back he asked me if I had seen a Neurologist. I told him I had. Then he asked me what he had said, so I told he that the neuro had told me that there was nothing wrong with my nervous system. He then said solemnly that he was going to refer me back to my neuro because there appears to be some thinning of the nerves in my brain and that a neur would better be able to explain what was going on. I was not completely surprised buy this because as I'd mentioned earier I had examined the MRA myself and noted the difference in mine compared the pictured posted as normal on the web.
OK. This did not unset me. But what did upset me is that after a saw the ENT specialist, I walked over to the imaging lab and requested a copy of the radiologist's report for my MRA, and it said it was normal. I was so upset and confused. I still am. Every test I have had at this hospital comes back as normal. Now I have had one MRI showing white spots, which my neuro told me to forget about, and now, 6 months later I have another MRI, plus an MRA that show white spots and abnormalities in my "Circle of Willis, and it is not acknowledged by the radiologist! What the heck is going on.
Can anyone give me a logical explanation for this strangeness? I am really starting to think there is a conspiracy going on.
But really, what could this be?
In summary, it sounds like you need to take your MRI's with you to a MS specialist and get a formal reading with the doctor. Don't try to interpret the results yourself, you will drive yourself crazy! Good Luck!
I then had to practically beg him for a follow up appointment, because basically he was ready to write me off. But he conceded and gave for one for 2 months away.
What I am telling you is that I have no income and so I have no options but to receive dx from these two neuros. There is no MS specialist at tthat hospital, however, the two neuors there do consider themselves to be so.
Since Setember 30, when I got my MRI/MRA done I can not seem to get any doctor to call me the the result. I am on pins and needles to say the least. It is pure anguish for me. I have left several messages to the Rheumatologist who ordered the MRI/MRA, whith no reply, and I have called my neuro because the ERT who was examining me for tinnitus went and looked at my MRI/MRA and came in and asked me if my neuro had talked to me, to which I told his the neouro told me there was nothing wrong with my CNS. Then my ENT said in no uncertain terms that he was referring me back to my neuro because there are some thinning of the nerves in my brain and that a neuro would be better qualified to explain to me what is going on, and what it means to me. But I can't get anyone to return my calls, or to give me an appointment to come in to talk to them. This is way I have taken it upon my self to try and understand what might be going on with me. I seem to have no other recourse.
Do you have any other suggestions?
I just hate that doctors treat individuals with no insurance like they don't exist, and I think that is how they are treating you. If you don't get any response, with a reasonable call back for answers, go to the president or who ever is in charge of the "community hospital" with a complaint of your treatment. Good luck!