Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
This community is a place where members can discuss current events and weigh in on what's going on in the world.
So while developing a sense of responsibility is a good thing, too much of a good thing isn't healthy for any child. If you need more help than your children are able to provide safety and confidently, talk over your options with your healthcare team and call the National MS Society for tips on finding help in your home.
This incident wasn't one that is too much for your daughter to take on. I completely agree with LM in her response to you. The problems begin when household chores interfere with schoolwork, social activities, sports, and so on. So, if your children don't have time to do their own stuff, you probably need to reassess and adjust the situation.
They never complained.
After 2 months she needed much more.Hospice,home health care,came in,and I qquit work. We tightened our belts,and the boys helped with chores,but still had their own time and activities.
My sons also continued to spend time with their Grandmother. They both adored her.
In 2 more months Mom was gone.
I have no regrets. My 2 boys have grown into wonderful young men. Very caring,with great human and moral values.
Don't beat yourself up. Call for extra support and help if needed.
When my kids were 9 and 12 and a newborn. I was caring for a neighbour who was in bed, I also worked full time, in the morning I would go, tend to her, diaper and all, and leave ,food, water, pills by her bedside, then in the afternoon I would her home from work, run to her house, tend to her, go home cook then take it to her. One morning my son 12, then, told me ,today I'll go ,take it easy mom, he even changed her diaper, without looking, feeds her and everything else. In the afternoon when I went, she was telling me what a wonderful boy he was, he did everything with love and preserved her dignity by not looking, but got it done. My daughter also follow his lead, they would ask each other, who was going am and pm. They use to stay there too long in the afternoon, so I wanted to know why, everybody by separate questioning told me the same, they were talking and getting to know each other. Today my kids are 31 and 28 and still talk about Edna. Lessons whe don't even know we give, because after that my son has taken care of other family members and with love.
Accept help, love, love, love the child. Also get a walker.
Love, Alma
All sage advice.
It's funny I wrote that because I am always telling people to include your kids in your care. That it makes them feel in control and not as helpless. And yet, I don't follow my own advice. My daughters love helping me, and if I let them help me then I have more energy to help them and play with them, so we all win.
I was just having a really bad night that night and letting things get to me. I think I will bookmark this post so I can come back on bad nights and let your responses encourage me.
Yes, its a burden. Its not fair. But your children would probably rather help you if they are able to, than have you withdraw.
None of it is fair, but I am sure your children love you and are worried.
I would have done anything for my dad, and would have done so gladly and with a heart full of love. There were certain aspects of care he refused to let me do once the MS progressed pretty far in order to preserve his dignity and I was glad for that.
He only had partial custody of me, was remarried and had two other children who lived with him full time. So I can't speak for all of the time, but whenever I was there I was happy to help.
Once I started driving I would take him to places he needed to go and his legs were so stiff that I was afraid I was hurting him or injuring him trying to get his body into the car. I think it would have been a good idea for me to have had some sort of training to know if I was bending his limbs correctly.
If ever you feel your children are not strong enough to take care of your physical needs, it might be a good idea to call in some sort of home health care. There are ways to get it with financial assistance or insurance. My step-mom was my dad's full-time caregiver, but occasionally they did have someone else come in.
Take care and remember, you're children love you!