Multiple Sclerosis (MS) Support Group
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AusSue
I have had a rotten time of health recently. I was taken to hospital on Fri 14 November with a blocked bowel which they drained with a gastric nasal tube. It is a tube that goes up the nose & down into the abdomen. I was there till Monday 17 November.
Only to be back in hospital on the 19th I was back in unconscious this time. 3rd time this year. They got drips in & put a reversal drug in to get the methodone (used for pain) as they thought it might be that.
I didn't wake up on the Wednesday 19 & district nurse came to change my catheter & fortunately we have keys available with a code so she let herself in. She was having trouble with me going straight back to sleep. Another friend came around as I hadn't answered her phone messages on home, mobile or text & we had planned to catch up. She had trouble raising me & ended up putting our puppy on the bed so my bed to wake me up. Sha managed to get me up & had some breakfast & stayed with me till hubby got home late afternoon. She said I was responding but not making much sense & was at the stage where she had to feed me & give me drinks.
When hubby got home I was getting less responsive & couldn't answer him properly so he pressed my personal alarm to get an ambulance to hospital.
The Dr's that worked on me were apparently really good & within 5 mins they were working on me. I finally started to wake briefly about 3am & David had stayed the whole night. The Dr's kept thinking I had taken extra drugs - od'd & I hadnt.
I was in icu for about 48 hours then on a ward. By this stage I had lost use of my right leg so was only allowed out of bed with a nurse or physio.
I was very slow healing, they gradually put me back on most of my med's. Then the rolling Wednesday night the same thing happened. I went unconscious, my breathing was shallow, my eyes were pin prick pupils & the eyes were unrest erupted to light. They gave me injection of morphine to see if I responded but I would go straight back to sleep & didn't open my eyes.
I was sent back to I.c.u. In the high dependency unit which meant I had a nurse at the end of the bed to monitor me. Apparently the Dr's from intensive care were keeping a close eye on & so were pain Dr's.
I came back to Thursday evening about 6pm so lost the day. The dr's gradually put me back on some of my drugs to see what I reacted to.
They took: methodone, Valium, decreased baclofen to 4x25mg a day, had been taking 5.
The Dr's worked out I had toxic septicaemia from some of the drugs I was taon.
I finally got up & walked to the loo by myself on the Monday (this week), & then gradually allow ego walk outside the room too.
The pain clinic put on a new drug (in Australia) parlexia, originally 150mg 2times a day of 250mg but it didn't last 12 hours so they chaged it to 100mg 3x a day so about 8 hours Apart
This is working but I stll have 50mg tramedol Up to 4,times a day for breakthrough pain.
They did eg, mri's spine head & lower spine & found I have deteriorated spine, protruding disk lower spine & also neck which explains the pain &
Restricted movement. I have seen orthopaedic dr & will see them as outpatient when I get an appt.
ThIs has been a horrible time.
I was glad to come home on Friday & resting more comfortably.
Thanks for reading & any responses will be appreciated, especially regard to the palexia & spin disks.
Only to be back in hospital on the 19th I was back in unconscious this time. 3rd time this year. They got drips in & put a reversal drug in to get the methodone (used for pain) as they thought it might be that.
I didn't wake up on the Wednesday 19 & district nurse came to change my catheter & fortunately we have keys available with a code so she let herself in. She was having trouble with me going straight back to sleep. Another friend came around as I hadn't answered her phone messages on home, mobile or text & we had planned to catch up. She had trouble raising me & ended up putting our puppy on the bed so my bed to wake me up. Sha managed to get me up & had some breakfast & stayed with me till hubby got home late afternoon. She said I was responding but not making much sense & was at the stage where she had to feed me & give me drinks.
When hubby got home I was getting less responsive & couldn't answer him properly so he pressed my personal alarm to get an ambulance to hospital.
The Dr's that worked on me were apparently really good & within 5 mins they were working on me. I finally started to wake briefly about 3am & David had stayed the whole night. The Dr's kept thinking I had taken extra drugs - od'd & I hadnt.
I was in icu for about 48 hours then on a ward. By this stage I had lost use of my right leg so was only allowed out of bed with a nurse or physio.
I was very slow healing, they gradually put me back on most of my med's. Then the rolling Wednesday night the same thing happened. I went unconscious, my breathing was shallow, my eyes were pin prick pupils & the eyes were unrest erupted to light. They gave me injection of morphine to see if I responded but I would go straight back to sleep & didn't open my eyes.
I was sent back to I.c.u. In the high dependency unit which meant I had a nurse at the end of the bed to monitor me. Apparently the Dr's from intensive care were keeping a close eye on & so were pain Dr's.
I came back to Thursday evening about 6pm so lost the day. The dr's gradually put me back on some of my drugs to see what I reacted to.
They took: methodone, Valium, decreased baclofen to 4x25mg a day, had been taking 5.
The Dr's worked out I had toxic septicaemia from some of the drugs I was taon.
I finally got up & walked to the loo by myself on the Monday (this week), & then gradually allow ego walk outside the room too.
The pain clinic put on a new drug (in Australia) parlexia, originally 150mg 2times a day of 250mg but it didn't last 12 hours so they chaged it to 100mg 3x a day so about 8 hours Apart
This is working but I stll have 50mg tramedol Up to 4,times a day for breakthrough pain.
They did eg, mri's spine head & lower spine & found I have deteriorated spine, protruding disk lower spine & also neck which explains the pain &
Restricted movement. I have seen orthopaedic dr & will see them as outpatient when I get an appt.
ThIs has been a horrible time.
I was glad to come home on Friday & resting more comfortably.
Thanks for reading & any responses will be appreciated, especially regard to the palexia & spin disks.
ScaredMama
Wow, I'm sorry you had to go through that. It must have been difficult and frustrating. I'm glad to hear that you are now out of the hospital and at home. Wishing you the best of luck. Hope someone is able to answer and help you out on some of your questions.
AusSue
I meant to say the new drug is Palexia (tapendoll) I am taking it 8 hourly, so 3 a day. If anyone is on them I would love to know more about experience.qn it too.
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