Multiple Sclerosis (MS) Support Group
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I always try to be very positive about my health, but sometimes i just need to let out my frustration. No one around my understands what i'm going through, so i'm here to unload on you guys because you know exactly what i'm going though.
My mother is here from out of state visiting and is staying with me. I know that she gets really worried about me because i'm a single mother of two young children and have no help. I don't like her to know when i'm having a bad day or how bad it actually is. On Saturday night, the pain started along with the numbness in my leg. She got to see how hard it can be for me to walk and take care of the kids. That night i was up all night vomiting and in the morning i was in so much pain ALL over!! I took some baclofen, meclizine, sucked it up and went to church.
Half way though the sermon i was in too much pain to sit, too fatigued to keep my eyes open and still nauseous. So in the middle of service, i had to leave. When i came home, I was unable to get my baby girl out of her car seat so my mom had to get her. My 6 year old son, had to help me in the house and he helped me to bed (the best little boy ever). I took some tramadol and a heating pad and went to bed.
The look on my mothers face was... I don't really have words for it... just pitty. All i could do was cry. My baby girl wanted to play and my son was trying to be a big boy and make me feel better while my mom just looked at me helpless.
I know that there's so many things to complain about and to be thankful for, but I truly hate this disease! Thank you all for always being so supporting and understanding.
My mother is here from out of state visiting and is staying with me. I know that she gets really worried about me because i'm a single mother of two young children and have no help. I don't like her to know when i'm having a bad day or how bad it actually is. On Saturday night, the pain started along with the numbness in my leg. She got to see how hard it can be for me to walk and take care of the kids. That night i was up all night vomiting and in the morning i was in so much pain ALL over!! I took some baclofen, meclizine, sucked it up and went to church.
Half way though the sermon i was in too much pain to sit, too fatigued to keep my eyes open and still nauseous. So in the middle of service, i had to leave. When i came home, I was unable to get my baby girl out of her car seat so my mom had to get her. My 6 year old son, had to help me in the house and he helped me to bed (the best little boy ever). I took some tramadol and a heating pad and went to bed.
The look on my mothers face was... I don't really have words for it... just pitty. All i could do was cry. My baby girl wanted to play and my son was trying to be a big boy and make me feel better while my mom just looked at me helpless.
I know that there's so many things to complain about and to be thankful for, but I truly hate this disease! Thank you all for always being so supporting and understanding.
I still feel guilt at times when I don't have energy to spend more time with them, but its much easier in the fact that they don't depend on me for everything.
One good thing is that your son is learning empathy, compassion, caring, and concern for others. What a wonderful helper!
Im a single mom too, so I understand. I had ALOT of help from my parents though. Stay strong and give that little boy a BIG hug and kiss!
Its a chain in my house, mom do it to me, I do it to my daughter, she does it back.
All I see and feel is love and I just say it. Mommy loves me and mom just say,,,, my baby and kisses me,, I do the same with my daughter and she just goes into baby mode,, lol and cuddle.
When I was healthy and chasing dreams or responsibilities, I didn't have time or opportunities to enjoy this.
At home, someone exercising is an opportunity to be a cheerleader, we are doing something, even if we look funny, stumble or fall.
Thank God your mom was there to take care of kids while you take care of yourself.
When my mother is looking at me like that, all I can think is about her emotional pain, sometimes I just say while in bed, comehere, and spoon with her and just let her cry, when she is done, I make her laugh again. Precious moments.
Alma
I had one baby but when she was small, I was pretty ok/ ms wise. Now not so much. I don't know how I would've managed it had I felt like I feel now. God bless you. And your little troopers.
My mother (retired nurse) helps me. She is very strong. I don't like it when I catch her looking like I have a chicken on my head as she watches me struggle. I see it in her eyes.
Vent anytime you need to. We all care and understand.
lvAxo
I know there isn't anything I say that can make you feel better, but I hear you and feel for you. Sending positive thoughts and well wishes.
Thanks again to all of you :)
Sounds like you have great kids.
Take care of yourself & kids.