Rejoice with me. For 10 years, I have lost my career, lost much of my vision, my life, spasticity so bad I scream in pain, Numbness, tingling, headache, burning sensations, cobweb feelings, weakness, swallowing problems, speech issues, cognitive issues.

And now, I don't have MS.

My MS specialist left.

So, I need a new neuro. We have no MS doctors around here. I saw my new neuro today.

He walked in, said his name and said I did not have multiple sclerosis.

He said, I did not present properly, that lesions on the brain is not a way to diagnose MS. That 50% of the population have lesions. That having 20 lesions means nothing, he has seen people with a lot more and not have MS.

I had a negative spinal tap 11 years ago when 1st dx and the neuro at the time said that in 10% of the population they never have a positive spinal, that it is not a definitive rule.

She based her diagnoses on my symptoms, evoked response and symptoms.

The new dr said that "Dr. ______" was not a real MS specialist, she just treated mostly MS patients and did trial studies, that she was not trained in mS. That he has already, in the last 4 months, sent 5 patients out of his office that she diagnosed with MS and sent them out saying they did not have it.

He said I had sleep apnea... just by looking at my throat. He said I snored a lot. I said no, my husband says I never snore except when I have a cold. He got upset and said I had a big neck and no breathing way... thus sleep apnea. I said I was tested twice in a sleep study... and it did not show up.

He is a neurologist.... whose specialty is sleep disorders.

I love how doctors will give you the disease they specialize in.

So, he ordered another spinal tap. If it is negative them I do NOT have MS.

He was writing a prescription for Copaxone. I said, why... if i don't have MS.. lets wait and see what the test results say.

he said i am NOT to stop taking the Copaxone, If I do, i could relapse.

Uh, how can I relapse if I don;t have MS?

Well... he said, I have a 50/50 chance of having it.

So... what if the test is negative. What then?

then you don't have MS he said. So, what do I do, i cannot live like this, He said if it was negative then he would have to refer me to the Cleveland clinic to an MS specialist.

Uh... why send me to an MS specialist if you are so positive I don't have MS?

AAAAAAHHHHHHHHHHHHHH!!!!!!!!!!!!!!

I am so stressed and frustrated.

For 10 years 2 neuros and about 7 radiologist who read my MRI indicated MS.... and now this crap.

I just want help. A dr to give me treatment... and I end up with a dr whose sole goal is to find an many patients of my old drs and find her diagnosis wrong. Like a vendetta or something. He never asked me once about my symptoms except my optic neuritis. That is all he cared about. Would not let me speak of all the other issues.

I am ready to quit.