Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
I have isolated myself once again.
I find it hard to reach out.
with my memory it makes it harder to keep track of things.
the way thing are going my world shank. I wanted to be by myself.
As some of you know I was paralyzed one yr ago. But with the chemo & steroids I was able to move once again.
I have developed worsening health problem from the steroids & chemo.
I have pitted edema quit bad.
My irregular heart beat worsened
diabetes got worse as well
there are a few other problems as well.
So now I am not going to take the steroids any more unless my breathing is effected.
So now the numbness is getting worse.
all of my symptoms are getting worse.
swallowing problems
bowel problems
any way I have not wanted to think about what is happening. So I have been reading to escape. I closed myself off.
It is hard to know what is happening to me.
I got a cognitive testing & in many ways I am slipping just one more "joy" of MS
I have decided I need people in my life again. I am going to try to reach out & be there for others once again.
I took a break from working on the sexual assault crisis line.
I have once again working on it.
It helps me to help others
and to talk to others
I find it hard to reach out.
with my memory it makes it harder to keep track of things.
the way thing are going my world shank. I wanted to be by myself.
As some of you know I was paralyzed one yr ago. But with the chemo & steroids I was able to move once again.
I have developed worsening health problem from the steroids & chemo.
I have pitted edema quit bad.
My irregular heart beat worsened
diabetes got worse as well
there are a few other problems as well.
So now I am not going to take the steroids any more unless my breathing is effected.
So now the numbness is getting worse.
all of my symptoms are getting worse.
swallowing problems
bowel problems
any way I have not wanted to think about what is happening. So I have been reading to escape. I closed myself off.
It is hard to know what is happening to me.
I got a cognitive testing & in many ways I am slipping just one more "joy" of MS
I have decided I need people in my life again. I am going to try to reach out & be there for others once again.
I took a break from working on the sexual assault crisis line.
I have once again working on it.
It helps me to help others
and to talk to others
Love ya ...praying for you my dear sweet lady.
Blessings,
Stacey
please just stay connected with us,we do all think of you often and really do care,healing thoughts are being sent your way ok
Michelle
You are doing the EXACT right thing for you. You are not curled into a corner and crying begging to end your life, you have simply shifted gears and are accepting YOUR limits. Books can take you away. There is nothing wrong with TV if used to watch good stuff, and you dont get hooked on the playboy channel (lol) and do be in your home, where your comfy thing are, and your favorite pieces is a dream!
I will add you to my prayers. Sometimes we just have to stand up and say I am going to take good care of ME this time. You know this group is here if you need or want them to be. hugs, support, advice, or just cheerleaders. Hang in there.
many hugs, connie
Get out, meet people, even on the grounds you can offer comfort and joy to others. I missed you, but last I heard you were spending weekends at home. I've always been very private, since I'm sick, I talk to everyone, everywhere, like the crazy person in the neighborhood,, lol,, so not me, but sometimes I make someone happy just by listening. If you are at the rehab, visit with others, listen to their stories, little things that means the world to others. You can roll around and offer the most important thing to others,, company, even family members that are there need someone to talk to.
Alma