i have migraine sometimes. I take Maxalt. It usually knocks it out for me. Good luck and hope you feel better.

Hello!

I've read that MS can be a cause of headaches, but my neuro dismissed mine as 'tension' headaches and just wrote me a script. It's funny because the ONLY time I had headaches prior to potentially having MS was after I drank too much :D haha. What a lovely disease...no one really knows WTF is going on!

BIG Smiles :p

Jamie

Now my MS does come with headaches and they where terrible at first and got so bad they would throw me into convulsions. My nero called them Bombers.....which are way above the migraine stage. It took forever to get them under control and the MS meds and other migraine meds would not work so we tried Kepra which is a seizure med. Now I just have to be careful with the direct sunshine and heat for I have no control over my body temp and this can really set it off.

I have suffered migraines since I was a teen, and the last couple of years I have daily headaches (mainly from allergies) but to answer your question....I dont know if it is MS or not, or I am just one of the "unlucky" ones with chronic headaches. Dont think my doctors will ever figure that one out either.

I get severe short-lived headaches that will stop me in my tracks and put me in bed for the rest of the day incredibly tired/wiped out. I also have dull regular headaches. Neuro says it's from the MS, nothing has really helped so far, so no advice, but understanding.

I'm in the midst of an MS headache right now!!! Ugh.

I get migraines but they don't cause headaches. They cause vertigo instead of headaches. And sometimes visual aura. My doctors don't think that it's caused by MS though. The good thing about migraine associated vertigo is that I don't normally get the terrible headaches. But the bad thing is the vertigo is pretty constant. It virtually never goes away.

MS can cause problems to any part of the body.

BUT I got my first migraines from Rebif. The drug itself can cause headaches so if you are on interferon, it can cause headaches. Please report it to the company so that they can report them to the FDA. They are required to.

My doc said that a certain percentage of patients gets the migraines from interferon. It is listed as a side effect and my headaches were no small headache, they were full fledged migraines. When I changed to Avonex, the migraines went away because the dose is less than Rebif, but I am starting back on Rebif starting this month and so I am prepared to get migraines again from that.

I take Zomig for the headaches and it works for me. In fact, I break them in two and it works fine with a half dose.

Good luck with your findings. Also, I had a roommate who had migraines and she discovered that she had food allergies and certain foods can set off migraines so MS may or may not be related to your migraines.

I get headacs but iI dont know what causes them

Cathy

Angie ~
I've had daily headaches for 17 yrs .
I just called them tension headaches.
I take Fiorinal with caffeine and aspirin and it knocks it out in 15 mins before it get to the migraine stage.
BUT now since I've been on my sleep apnea machine they seem to lessen ALOT!
as for my MS when I heat up , headaches come as fast as possible.
I hope u feel better! and find the right med for u !
Always Silky ~

Yes a million times yes to headaches. My head/neck hurts 24/7 and only increases in severity but never goes away. Going on 6 yrs with a constant migraine/spine ache...
Not much works for it since its nerve pain. Have tried most everything...and I mean everything.
Diet, appropriate supplements (like evening primrose and ALA to start), and cannabis are your best bet.

I also get the headaches, neck & shoulder pain & my Dr says it's the MS.
I agree with the cannabis, my dr doesn't. She says it worsens the cognitive issues, oh well, I will do whatever makes me feel better.
Hugs,
Tammy

Thank You All for the info !

Not sure what to think anymore ! Silky I do take Butal - ACET - CAFF along w/ Depakote I still get the headaches and do take them daily !

I didnt relize I've now been in this pain cycle for 3 mths now this has been but not one of the longer ones I've delt with ...

I'm to the point of pulling my hair OUT ! My knees all the mucles in my legs are just so painful !

THANKS AGAIN ! xxx ANGIE

What I get is what's called trigeminal neuralgia. Basically the nerve that wraps your jaw (which splits into three and pretty much reaches the whole side of the face) swells for no good reason and it feels like your face is going to break.

I've had 3 root canals because the pain can be mistaken to tooth aches, so there you may have an idea of how the pain feels.

The pain is so excruciating that the slightest breeze makes your entire head thump in pain.

I hope it's not MS, but if it is, don't worry. You can lead a perfectly good life if you take care of yourself :)

I did ask my MS specialist and he said MS doesn't cause headaches and he explained why, it made sense but don't remember the details, however I do get headaches and I think they're related to MS, they are not like tension/sinus/migrain...headaches..it is more like an electric shock comes from behind your head and goes to the top for a few seconds.
This headaches were the reason I went to neurologist in the first place.