Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Share with us whats going on ....
hugs
Anne
here are some general symptoms for you...ok ? Let us know what happens after you see doc again on monday ok ? hope this helps
Symptoms of MS are caused by the disruption in nerve signaling from the central nervous system (CNS) to other parts of the body as a result of damage to the myelin (the protective coating around nerve cells) and the nerve cells. The frequency and duration of symptoms vary and may include3:
Fatigue
Tingling, pain, or numbness
Problems with balance and walking
Changes in vision
Depression/emotional changes
Impaired thinking/understanding
Poor muscle coordination
Sexual problems
Slurred speech and stuttering
Bladder and bowel problems
I myself am about to start Copaxone.. and there is alot of info and reviews from people on this site under the "treatment" portion of this site.. Yes, headaches are common but more-so... Optic neuritis is probably close to number one on that list... Its when your optic nerve is swollen / inflamed behind your eye causing pressure behind your eye, blurred vision and headache etc.. That is what all started my journey with my newest relapse 3-4 weeks ago.
Calm down... your over-scaring yourself..
Just educate yourself and you'll see ..
Take baby steps and one day at a time..
Maybe you can get into your doc earlier then next monday..
First, one of the great things about the techno age is that we have so much information at our fingertips, and one of the worst things about the techno age is that we have so much information at out our fingertips..hence the need for a site like wrongdiagnosis.
If you started to consider that you had MS two weeks ago, and you find out that you have MS in a week from now, you will have been living with MS for at least three weeks. Alof of the time that you continue to live with MS will be much the same, only you will know that you have MS.
You may experience relapses, and nobody can say of they will be large or small, but the thing is that once you learn more, if you need to, you may find that there are things that have happened in the past that may well have been MS, and you made it through.
MS is not fun, but it can be funny, I honestly have to just shake my head at myself from time to time. There may come a time when it causes changes in people's lives, that is true, but they aren't always huge, and they do not have to completely turn your world upside down. If you receive a dx of MS, try to really keep in mind that you are no different after hearing that as you were before hearing it, except that you can immediately begin to educate yourself and find ways to keep your health at its best.
Above all, MS is something that people live with and have great lives. Do we sometimes have to rearrange things, yes, maybe the most rearranging comes in our priorities and how we see our own worth, but it is certainly manageable.
So I suggest that you stop imagining the worst, I know the feeling, but don't do it, and wait for the answer. If you want to, go look around at some informational sites, read blogs of people living with MS, it is going to be okay. We tend to complain alot here, I know, you see all kinds of "what should I do," or "how can I deal with this," kinds of threads, but remember, this is the place to do that, we all are living lives and are pretty much okay.
I hope that the answer you get is not MS, I always hope that, and that is something with an easy fix. But if not, and you do have MS, well, this is a great place to share, get hope, and to learn that living with MS is annoying and none of us would choose it again, but we are making it. And, you might actually make some good friends along the way.
Stress is horrible for anything, and MS would put it on the menu for every meal if it could, it just loves stress as it gives it lots of fuel, so try your best to relax and remember that no matter how much you worry, it won't change the dx.
Take care, and be sure to let us know what happens.
nikki
It doesn't really matter what he says. If he tells you it's MS, you won't feel any different symptoms just because he says the words. It's just a name for what you're already living with.
I work full time (as many on here do) and I play sport (as many on here do) and I'm taking up dancing, an art class, joining a choir.... Live continues as it would have if you didn't have a name for the pins and needles. Other things may develop, but they may not. After my first spell of pins and needles in both legs, I then had 6 YEARS of being completely symptom-free. Other things have happened in the last 12 months, but I've only missed a couple of days of work in that period and some of that was tonsilitis!
Sure, you'll find people bitching and moaning on here. That's one of the reasons the board is here - to give you that space to vent when you need to, to people who understand what you're going through.
No-one can tell you what will happen to you, that's something you'll have to find out for yourself, but if you keep yourself healthy (in mind and body) you'll be better placed to deal with life as it happens - the good as well as the 'not so good'.
On my bad days, I hate the world. On my good ones, I'm on top of it! No different to before I had MS.
Loads of luck with the doc. It's a scary time, but it doesn't have to me life-threatening or life-changing. You're still you.