Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
This community is a place where members can discuss current events and weigh in on what's going on in the world.
being overweight is not something you can avoid as medications do that regardless. I have tried to drink a lot of water, esp when hungry then eat a piece of fruit or nuts or yogurt so that it is not as bad for you.
As for support groups, I have been fortunate that there is one where I go to physio, we stay after & have a coffee & chat.
If you dont have that option are you a mbr of the ms society for your area? They may be able to link you up with someone either to meet & talk or on the phone which could help you deal with some of the issues, if not even someone from there.
You said you have trouble walking, do you still drive? If not why not try to get a mobility scooter, the freedom they give is great once you get used to them. Also do you use a walker or other aids to help you walk. I use the walker & it help me get around & also I always have a seat when I need it.
Even just to get out for a ride in the fresh air on a scooter gives a great sence of freedom I find.
I cant suggest any groups as it is all different there to here of course. Do you have any hobbies or something you would like to do that you could get to a club or course to learn/do it more. That way you are mixing with other people not only ms people.
Just trying to throw some idfeas out there for you. Hope something from it helps you too.
Main thing is remember "I may have ms but ms does not have & define me" that helps me to cope with a lot of the challenges.
If you want to add me as a friend please do so & then you will be able to read my journals too if you want to.
Take care of yourself, be kind to yourself too.
Hugs
Neuro started my on Tysabri ( once a month IV ) doing much better still in a wheelchair but have started walking a little so far. Have not fell in almost 5 months now. wooowhoo!
Try to stay strong for your child-and for yourself. You always have us to vent to(website). Same with me I will accept you asa friend also.