If you find out, let me know as well!

This has been my most difficult issue over the 20 years of my diagnosis. I am in my mid-forties. I have not gone the drug route for helping with energy except caffeine and more recently trying LDN. I am too sensitive to caffeine now, so I can only have minimal. This is how I am dealing with the fatigue lately. I do take a nap (or two) almost everyday. I take vitamins, especially B12 and vit D. I have ocassionally used B12 shots and nutrient IVs from my naturopath. I try to avoid sugar as to not get crashes and I eat nutrient rich food. I also try to drink plenty of water, if my bladder problems are not too severe and/or I am staying close to home. I do find that along with naps, getting some outside time in the fresh air, low key exercise like walking and some time talking with friends as well as listening to good music are things that revive me a little...actually more than I expect sometimes! I also like peppermint essential oil which I put on my fee/legs and temples/neck. It helps me feel more awake with the cooling, tingling effect in a good way. I can take a cool shower too, but don't really like cool showers. I try my best to get as good of a night sleep as possible. I really take the lowering stress thing more seriously than ever too! I know easier said than done sometimes, but I have given myself permission to say "no" to a lot of things. I take control of things I can and the things I can't I try to discuss with someone and/or let it go. I often drink a little tea in the afternoon after my nap to get me going again. I am a busy Mom of 3 and I am really thinking about more ways I can conserve energy. If anyone has some good ones, let me know too.

I take Ritalin & it works pretty good.

Ginseng is keeping my fatigue away. . . I take a minimal dose, when I need it (on days I have to work etc).

Oh, my Naturopath also gave me an adrenal supplement to take for the afternoon slump. I think I'll go take one...

Ronnie - what was the name of the supplement?

Hi thanks for info. Over the counter or prescription?

I take Amantadine. It is a prescription. I have a friend who is introducing me to essential oils. She uses it for migraines and other reasons. She said that there is one that can help with energy. I will have to research it and find out which one.

My Naturopath did bloodwork, urine and saliva tests before giving me supplements, but most are not prescription. The adrenal supplement is called NutriAdrenal.and has B6, panothenic acid, PABA , Cordyceps extract, Rhodiola extract and Ginseng

The only thing that helped me was green juice and looks gross but tastes good and had a lot of energy.

CASMIRA, me too. Green juice and vitamin D help a lot!

I can also agree that I felt best under a Naturopath's care. Unfortunately the cost is out of the question where I live now.

I also take 5000 units a day of D3 which makes a difference. Acupuncture helps temporarily but I had it for 20 years and believe it kept me walking during that time.

If you can find a 'integrative' or 'functional' medicine doctor you might want to have your adrenals checked. These are what doctors - MD's who practice alternative medicine are called. Don't stress about the wheel chair. It also saves you energy. And it may not occur to you but there are worse outcomes. One day at a time.

Good Luck,

Melanie

Sorry for the 'stupid question', but what is green juice?