Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
First of all I want to apologize. I have so many questions I feel like I am dominating the message board. I'm sorry, I'm just trying to get answers and who knows better than patients dealing with MS themselves. You have all been so gracious. Thank you.
In desperation I was looking through all my prior MRI reports looking for answers. I found two prior brain MRI that state lesions with abnormal enhancement. However they are listed as probable capillary angiomas. Does anyone know enough about MRI to know if MS lesions could be mistaken for capillary angiomas if they weren't suspecting MS at the time? Or has anyone had their lesions previously dx as something else?
This whole time my family doc has told me that despite my symptoms that MS is out of the question because my MRI of the brain didn't show MS lesions. But in retrospect there were prior lesions seen. And they have never done a study of my spine or cervical spine.
Thanks again!!!
Melissa
In desperation I was looking through all my prior MRI reports looking for answers. I found two prior brain MRI that state lesions with abnormal enhancement. However they are listed as probable capillary angiomas. Does anyone know enough about MRI to know if MS lesions could be mistaken for capillary angiomas if they weren't suspecting MS at the time? Or has anyone had their lesions previously dx as something else?
This whole time my family doc has told me that despite my symptoms that MS is out of the question because my MRI of the brain didn't show MS lesions. But in retrospect there were prior lesions seen. And they have never done a study of my spine or cervical spine.
Thanks again!!!
Melissa
http://www.emedicine.com/RADIO/topic94.htm
Multiple Sclerosis is listed as a possible differential on imaging for capillary angioma. Now I am furious. The last MRI with contrast that showed these was in 2003!!!!!!!!!!!!!!!!
And the first time a doctor suspected MS with me was in 2001. But it was thrown out the window by family doc at that time and never revisited. Then the MRI was done in 2003 with no mention of MS but because of strange neurological sensations.
I can't wrap my brain around the fact that this is more likely to be MS now and could have even been diagnosed 5 years ago. OMG!!!
I was "lucky" enough to get diagnosed on the first visit to my neuro. I keep hearing accounts of it taking a long time to get a diagnosis, even though everything points to MS.
Don't apologize for asking questions! Having MS is scary, and can feel really lonely sometimes. My family loves and supports me, but there are just some things they don't get. Only other MS'ers understand! Arm yourself with as much information as you can. The people on here are really great and supportive!