I experience that and have found nothing to get rid of it..I understand that if signals aren't reaching the limbs this happens..I just have to keep moving.

When I push myself and keep going, that is when I experience most of my falls! My shoulder socket is still terribly sore but my tail bone is much better.

Something to be grateful for I suppose! Lol

I completely agree with Marilyn. Don't over do it.

Also careful on your shower water temperature as hot water can drain your energy. :(

yes, shower temperature is very important that it be regulated not to be too hot. Hot water causes a pseudo-flare to someone who is heat sensitive (lilke you), a flare that will last a few hours and disappear when you get away from the deterient (like the hot water!). I too suffer from lack of energy to exercise. I find that when I have a really active day, I'm more exhausted at night, and my pain level is higher than normal. I don't think "it takes energy to make energy" is the case for MSians. I know the books tell you that, but all exercise does to me is make me more exhausted and hurt. Maybe it depends on the "level" of MS that one has too.

Hi there,I too get heavy legs,can feel like I hav on steel boots, even though excercise is good hard to do without wipeing yoursekf out for the day some days I cant walk my dogs because I know if I do tha'll be it for the day
bye for now

I appreciate all of the posts! Yesterday I sat down and made a list of everything that I could do to conserve energy. I have started to implementing them.

When you only have so much energy, it is best to make the most of it when you have it!

Having a physical therapist that was aware of my MS helped me to begin walking again unaided. There are exercises that we did from a sitting position & worked upto walking on a treadmill and walking a straight line, keeping my balance w/eyes closed. It took 3x wkly for 3 months to get back to bare basics but I highly recommend it if you can afford it. You don't want to get caught in the middle of a parking lot w/nothing to grab onto & no balance. It can be the scariest motivator to begin PT.

One exercise you could do without fear of injury would be swimming. My local gym has specific swimming aerobics, and there is an 80 year old in the class, 2 pregnant women, and an assortment of others. I enjoy it, and believe it or not, it's almost relaxing at the same time. Good luck to you though, and hopefully you'll discover the right exercise that's good for you.

I walk a little bit further each day. The first day I only went about 100 metres and just went this distance for a week, gradually increasing each week. I have VERY SMALL goals and this has helped.- I am now walking nearly 1km each day.
I have been having a foot massage every month ( from a provider who knows about my condition).
Both of these things have made the heavy legs more bearable although I dont think it will go away completely - I only take a strong pain killer when I'm really desperate.
I have also, just recently adopted a diabetic diet because diabetics often have foot problems. I know this is a bit of a stretch and I am not a diabetic but I have certainly noticed a big difference in my ability to walk. I also got some 'diabetic' socks which are very helpful

I ask myself that questions every day if I have no energy how do I exercise? I also have that heavyness too. When I bend them I feel like the skin is three fold at the back of my knee. Does that make sence? Not sure where I am going to go from here.. I also have cronic back pain. Seeing a couple of differnt doctors next week and I really hope that one of them will give me some answers. I will take any suggesstions you might all have! Michelle

I have heavy legs to and it scares me. Sometimes I can't even lift them!