A little bit of backstory... In 2003 I was diagnosed with Crohn's disease and I am currently taking immunosupressants to control my disease. In 2009 I was diagnosed with MS. I started on Betaseron, and was on it for 2 years. I still have scarring from the needles... Unfortunately, or fortunately? Betaseron wasn't controlling my MS and I was admitted to a trial for Gilenya and everything has been wonderful, no flares since 2011.
Yesterday I had an appointment with my neurologist and he told me under no certain terms was I to continue with Gilenya. Apparently Gilenya taken with other immunosuppressants has 2 diagnosed cases of PML.
I'm a little worried about the JC Virus, but I am more worried that I have to go back on injections. My doctor wants me to start on Copaxone, or go off my medication for Crohn's disease medication and try taking Aubagio. Unfortunately Aubagio has not been tested with Crohn's disease so I have to convince my gastroenterologist to let me try taking this medication and stopping my Immuran.
I don't want to go back on needles. I hate them. i know there's less side effects with Copaxone but I didn't have side effects with Betaseron. I just hate the needles.
Does anyone have any experience with convincing a doctor to let you try a different medication?