This happens to me a lot! Then I fall! Now I am on Ampyra and having better luck walking and keeping my leg from turning.
I don't miss the falling!

Why is it that our legs hurt when we are trying to rest??? Hate that. Today I am having leg issues too and have been just dragging my left leg along. The muscles are so tight from my hip to my toes.....very uncomfortable. So, I sure do understand. I take Baclofen, Zanaflex, or Valium, depending on if it is day or night. Zanaflex knocks me out at night, plus relieves the spasms.

marilyn4342, do you take anything for spasmas?

I use Neurontin and a homeopathic leg cramp medicine from Hylands. It helps most of the time! Sometimes nothing works. You?

It definately sounds like neurapathy. I also suffer from severe leg pains. I just woke one day to the pain and it hasn't gone away in over 2 years. I see a pain management specialist and it has improved my quality of life by 95%. Instead of crying all day from the pain, I take pain pills to help alleviate the pain. It's not a 100% fix, but it works. Try not to let the pain get out of control in your legs. If it doesn't go away, see a pain management specialist.

On your foot turning in, it sounds like foot drop to me also, just like marilyn reported she experiences. I'm sorry you are dealing with this. I don't know much about it, but I understand there is some kind of brace your doctor can put you in to help your foot go straight. I think it is called an orthodontic or something like that.

Both these issues sound like something that should be reported to your neuro.

I guess that I should have mentioned I do have drop foot and I had an AFO brace made for me. It really helps! Ask your MD.

Before PT (Physical Therapy) slowly started to teach me how to walk again...I use to walk like you describe pretty much all the time...using my walker, I would have my right foot curl inward as I walked & my toes would curl under, it hurt...

If I wasn't doing that I would stomp & clomp as I walked & teeter-totter back & forth as I walked...with "Lead-jello legs that buckled underneath me every so often as I walked. My walker was & still is a Godsend when it keeps me from falling over, but so much "fun" when I fall flat out, walker on top of me!

As far as the pain in my legs...I pretty much go to bed & wake up nightly with it...When I wake up I can barely feel the bottom of my feet they are so numb, but slowly learning to walk better from PT (even though I have to do that outside of PT on my own now...long story, yay medi-cal...not!...but I've learned to not give up, so that's something), anyway, slowly learning to walk better, even though I could of used more PT, cause the leg pain is still there, well, the leg pain has gone down maybe 1%...so, hey, that's something, right...so just keep at the positive things in life is what I'm saying.

Take care,
Stay sane!

P.S...This IS NOT ME in the video, but this is a great video describing something you might want to look up called "Dystonia"...

Take a look, it's an eye opening video. Sure it hits home with many of us...

http://www.bing.com/videos/search?q=dystonia&mid=5C47EFC9798E8A851EF65C47EFC9798E8A851EF6&view=detail&FORM=VIRE4

Thanks everyone for your help. My neuro did mention a leg brace the first time I saw him but I was just getting use to accepting using my cane, and he said we would just take it slow. Silly of me I know but when you are healthy one minute and completely falling apart the next denial and fear get the best of you. I now use a cane, walker, and wheelchair, and its only been six months since he mentioned the leg brace. I guess it's time to listen to people who know what they're talking about and get a leg brace before I do some permanent damage.

Thanks again, you are all so great about this.
Kath

that video wow. I also have dystonia, had it since I was 5, but not dx til I was 12. I take carbidopa for it and it has been a god send. As long as I don't forget my pills that is, you would think after 18 years on them I would remember but I have been very forgetful the last couple of months. Baclofen is the other med they used to use for my dystonia. My mom keeps asking if the MS and the dystonia somehow go together.

Oh my goodness! I experienced the same thing a couple of weeks ago. My left leg (my left side is a wreck) was killing me and I stood up to walk to the kitchen and I almost tripped over my foot. I looked down and it was pointing inward! I had to focus on trying to make it point straight; I wasn't very successful. I thought this was just me. I'm still waiting for a diagnosis and every time I have myself convinced it is NOT MS I find another of my symptoms points in that direction. It's the not officially knowing that can drive a person crazy. Sorry, got on a bit of a tangent. I wish you the best.

Nana, thx for the info and go on as many tangents as you want. I know how crazy these symptoms make you feel and how angry I get when new ones come along. I haven't been on lately because of being so depressed, I think I need to find a new neuro soon and get some answers. I live in Ohio and I don't know any other neuro"s other than the cleveland clinic mellen center that I have been going to.

Any suggestions would be greatly appreciated.

Kath

I was complaining about my legs and ankles hurting yesterday. My wife rubbed my ankle and calves for less than 10 minutes last night. I feel much better, though not perfect. Yesterday was borderline unbearable.

I plan on wearing braces this evening to stretch my calf muscles.

I love that you all are just like me!!!

I had a really weird experience with this just the other day. I was sitting at the computer and my calf muscle in my right leg started twitching. The next thing I know it felt like my foot was broken. I couldn't walk or put any weight on it for 20 minutes. It was so scary. Happens when I am driving sometimes too which is even worse.

*HUGS*

Oh Kath, I'm sorry to hear you've been depressed. I think we all know how that feels. But I'm sad to hear you may be switching neuro's - and that you go to the cleveland clinic - that's where i'm asking my gp to refer me. I too live in OH and I was counting on that being the place to go for answers.

Nana you should go to the Cleveland Clinic, they are wonderful there. I just thought a second opinion would speed things up a bit for me. I'm in so much pain lately and I guess I just was feeling sorry for myself. My neuro there is great, and I know he has to check everything else out before he can give a diagnosis. I'm just being a brat and needed to vent. I'll stick it out for as long as I need to to get the right diagnosis. Good luck to you sweetie and please don't let what I said, on a bad day keep you from getting good treatment at Cleveland.

Have a good day dear
Kath