Multiple Sclerosis (MS) Support Group
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Hi everyone. WARNING long rant/post
I have been answering posts but not posting recently as going through a lot of crap medically.
I posted a while ago that my foot was giving me a lot of trouble & I have been in the moon boot/cam boot as I have severe osteo arthritis & also kohlers disease (has another name too that can't remember) which is basically the bones collapsing due to steroid use. I have had a lot of it over the years.
I finally saw the right surgeon 6 weeks ago & he sent me for more ct & ultrasound with dye. When I went back & saw him I need surgery which is a fusion of the bones right across the top of the foot & to make my foot flat. After the surgery I will be in hospital 2-3 days & in plaster 6 weeks then the boot (again) for 6 weeks.
Worst part is I am on a waiting list for surgery so could be waiting list for 3 months or more as what they class as urgent but not life threatening (category 1). Not happy at all.
The pain is now at the stage that I am having 300mg epilum twice a day, 600mg tegretol three times a day & gabapentin, panadol-osteo, tramadol as required (200mg slow release) & still in pain esp when I try to walk. I made the mistake of trying to go out our back step that is not large & it was so painful I decided that the clothes could go in the dryer anyway - it is winter here & was about 15'c with sun but cool. Been sore since.
This obviously means we can't go away in our caravan as we planned to for a weekend next month.
I use the wheelchair most of the time when I go out now unless literally outside the door like when hubby takes me to Dr. Use walker around home but becoming a chair potato LOL. When I move I do everything I need to all at once.
All of this pain of course is making my ms play up in so many ways it is ridiculous. Some days I just hate myself for what I put hubby through too & how I have changed too & what a lump of lard I am with all the weight I have put on.
Other days I am ok. Just the journey of ms I guess. Sorry for long rant.
I have been answering posts but not posting recently as going through a lot of crap medically.
I posted a while ago that my foot was giving me a lot of trouble & I have been in the moon boot/cam boot as I have severe osteo arthritis & also kohlers disease (has another name too that can't remember) which is basically the bones collapsing due to steroid use. I have had a lot of it over the years.
I finally saw the right surgeon 6 weeks ago & he sent me for more ct & ultrasound with dye. When I went back & saw him I need surgery which is a fusion of the bones right across the top of the foot & to make my foot flat. After the surgery I will be in hospital 2-3 days & in plaster 6 weeks then the boot (again) for 6 weeks.
Worst part is I am on a waiting list for surgery so could be waiting list for 3 months or more as what they class as urgent but not life threatening (category 1). Not happy at all.
The pain is now at the stage that I am having 300mg epilum twice a day, 600mg tegretol three times a day & gabapentin, panadol-osteo, tramadol as required (200mg slow release) & still in pain esp when I try to walk. I made the mistake of trying to go out our back step that is not large & it was so painful I decided that the clothes could go in the dryer anyway - it is winter here & was about 15'c with sun but cool. Been sore since.
This obviously means we can't go away in our caravan as we planned to for a weekend next month.
I use the wheelchair most of the time when I go out now unless literally outside the door like when hubby takes me to Dr. Use walker around home but becoming a chair potato LOL. When I move I do everything I need to all at once.
All of this pain of course is making my ms play up in so many ways it is ridiculous. Some days I just hate myself for what I put hubby through too & how I have changed too & what a lump of lard I am with all the weight I have put on.
Other days I am ok. Just the journey of ms I guess. Sorry for long rant.
You can't feel badly about putting your husband through this, and please don't consider yourself a lump of lard. You are being way too hard on yourself. This is all out of your control. You are doing the best that you can with the cards you have been dealt. That's all we can do, is our best. I pray that you do get in for the surgery sooner as well. Hang in there!! ((((HUGS))))
Amy
Today we both went to the Dr for scripts etc & now I need to have a lump removed from I wrist area to check its ok, not worried about that as it has been there ages & last Dr kept saying "nothing to worry about, just a kariotoses (skin formation), this Dr wants to remove it & have it tested.He also asked what the sore on my nose is & I have had it for a couple of months & he wants to check that & if needed cut that out too -ouch!
That freaks me out more as Dad's cancer that kept coming back was on the nose, then ears & bald head (at least haven't got that )LOL. He wants it done quickly - this week, so have booked in for Monday Morning to have hand one removed & nose checked. They do a skin check there with a wand type thing that tells them if it is a freckle or something to follow up.
What next, foot, hand & nose - all different totally parts of body.
Naturally excema has flared up on stomach & fingers & feet. which I knew it would.
Will keep you all updated on how I go & when I get results too. I am thinking positive that they are nothing as I have enough on my plate already & I am sure God couldn't be that cruel. I hope.
In sickness and in health,,,,,everyone says yes, few understand the meaning. Just love ,,,
Alma
Pain clinic, multi disciplinary Dr & nurse, neurologist, rheumatologist, physiotherapist, chiropodist, foot & ankle specialist, eye specialist for Botox, social worker & normal gp.
How many more are out there to add to it?? LOL
As for foot, have had several falls/stumbles into walls etc recently even with boot on so it is getting more painful to say least.
So the saga continues.
I got a referral to a plastic surgeon to check my nose -it has a sore on it that was bleeding, scabs, then bled again & when GP ran wand thing over it, it showed something under it. He thinks it is a Basal cell carcinoma (whatever that is) so got an appt on August 27, Dr is on holidays all of July. It is a form of non-melanoma cancer if I remember right.
I have had a bit of a look on line & generally these one's are not bad so that's a relief. Not looking any more as you can scare yourself with too much information often.
Just one more thing to add to my plate that I could do without for sure but I suspected something was wrong when it wasn't healing. Can't do anything till I see the Dr & that is not as worrying as my dam foot. Think I may have my priorities screwed somewhere there.