Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
I know everyone with MS is suspectable to some kind of pain. I am one that suffers 24/7. For the past few days my pain level has been extremely high. Does that mean I am going into a flare, or that I am currently into a flare? Or is it just pain acting up?
I am also on Ampyra and when I first took it my pain level shot up. I stopped the Ampyra and the pain subsided. I've been back on Ampyra for about 3 weeks now. It could possiblly be an Ampyra side-affect?
I am also on Ampyra and when I first took it my pain level shot up. I stopped the Ampyra and the pain subsided. I've been back on Ampyra for about 3 weeks now. It could possiblly be an Ampyra side-affect?
I have constant pain from MS, also. I have found that the hotter I get or the more active I try to be the worse my pain is. I don't know if you have any triggers like that.
I have had three episodes in 2010 where my pain levels really elevated for several days. The first time my dr treated with steroids and I had no improvement, so my dr said it was probably not a flare. The next two times (so far) I have been able to just ride it out with no other symptoms popping up. For me, it is probably stress, over exertion and heat setting it off.
Regardless, you absolutely should tell your dr about it so they can keep a record. You might also consider keeping a journal or a blog so you can keep track of when these things happen and see if you can find a connection or if it is just another awesomely great thing you get from MS.
I hope you find some peace with the new pain level. Like MS isn't bad enough, throwing chronic pain on top is like a giant party.
My mom bought me an air conditioner last night and you wouldn't believe the difference. My pain almost instantly went away. I had been taking tons of celebrex and tylenol just trying to control the pain.
I didn't think the heat affected me any more than a normal person until I actually had the chance to cool down.
I have been taking Ampyra for about 3 months now, and I HAVE noticed things being a bit more sensitive than previously, but it appears to me that this is helping my walking balance and stamina. Ampyra's benefits don't last terribly long, and if I miss a dose (which happens more than I would like to say...) I can tell a difference.
Lily