Multiple Sclerosis (MS) Support Group

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Anne8 07/25/2013

In the five years since I have definitely exhibited signs of having MS, yesterday, about 24 hours ago, I had a MAJOR episode. I was here, but not, couldn't focus too much on what people were saying, luckily could force myself to talk. My whole body seems to contract, for about an hour and a half, which felt like a day.
My mom (who I am visiting in VT) called a hotline and the person told her that maybe it was a one/off, left over stress from my trans-Atlantic flight. Needless to say, I am feeling rather delicate. Should I believe what the nurse said, that it could be a one-off? I was SO scared yesterday!

deleted_user 07/25/2013

This is tragic. I hope you find relief fast.

deleted_user 07/25/2013

I am so sorry you are having to deal with this during a visit with your parents! If it has gone away so quickly, I wouldn't be too concerned, but definitely seek help if your symptoms return. Just rest, relax, and chill if you can. Easier said than done, I know. Wish I was closer to VT, to come have coffee! Hang in there!

ChrissyH 07/25/2013

Anne ... I am sorry that u had to feel this type of pain. The nurses that r on call at support site are often well versed. I have never heard of 'one-off'. But that doesn't mean it doesn't exist. I would definitely call it Neurologist as soon as u can. They'll be able to tell u more specifically what was happening.

lots of warm hugs coming it way.

lchoppel 07/26/2013

I too have never heard the term "one-off". However, I experienced a very similar flare once in a doctor's office. I could not talk, could not focus, could not stand. It happened very quickly, lasted only a couple of minutes and left me drained terribly. Since I was in the doctor's office, he examined me, and sent me off for an MRI of the brain to see if I suffered a stroke. No signs of a stroke, so I count it up to MS. I've never had another episode like that.

I hope you are feeling more yourself soon. I know it was scarey! Take care.

Anne8 07/27/2013

Thank you my friends! I think I am back more or less to 'normal'. I do wish distances in this country (US) were much smaller, so seeing people were possible. And Lynne, thanks for your little story. Luckily you were in the doc office. Let's hope both of our experiences were one-offs (one time experiences)!

djbritt 07/29/2013

I know it must have scared you. I am sorry that you had to go through this but I am glad you are better. Life with MS is never dull. Take care.

Anne8 08/03/2013

An update. . . unfortunately it didn't turn out to be a 'one-off" or one time thing. Again, on August 1st, it started happening again. Since I already had it happen the previous, I didn't panic or freak out, but immediately took more of my usual relaxants (Baclofen & sativex, tried some of the medical marij I am trying while in Vermont) and actually took one of my husband's valium.
With that 'cocktail' and with forcing myself to lay down and try to relax, they didn't have to massage me quite so much as last time. But the 'ride' was from 9:30 to 11 p.m. again. This time, I did manage to drag myself up the stairs to bed at 12.
So, well, not quite so scary as the first time, but not the one time only like I'd hoped. . .

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