Multiple Sclerosis (MS) Support Group

This community is a place where members can discuss current events and weigh in on what's going on in the world.

0 Online

Bon67 12/31/2015

Hi everyone, I haven't been diagnosed with MS yet, although I do have four lesions on my brain. I have been having lots of neurological symptoms lately. This morning I woke up with the feeling someone put icy hot on the right side of my head, ear and neck. This is the only way I can describe it. Should I be concerned? I have an appointment with my GP next week. I appreciate any help you can give me. Thanks.

Studini 12/31/2015

Do a google search for "feels like icy hot on my head". There is a lot of information. Or try this link:

http://forums.webmd.com/3/pain-management-exchange/forum/2057/67?pg=2

I've had that sensation in my thigh for oh, 11 or 12 years, long before my MS dx.

Bon67 12/31/2015

Thanks Studini, I will check out the link.

dawizz95 12/31/2015

I get this sensation now and then and have gotten it for many years. I fid the ear thing to be the worst! The scalp thing is just as bad but not quite as intense. Luckily, it tends to not last very long in my case. I hope your case is the same.

Too date you are the second person I've run up against that has this "ear thing" as I call it. It drives me crazy, I must admit and how to explain this in words is next to impossible so I tend to never mention it out of FEAR, fear that I'll be thought to be insane.

Let us know what you find out about it from your doctor!

Happy New Year 2016 in the meantime ... :)

Bon67 12/31/2015

Thanks Dawiz, I will keep you posted, and Happy New Year to you also.

jillarie51 01/10/2016

I developed "icy-hot" flashes about 2 years ago - after 40+ years with MS - (now secondary progressive). I thought about what I had changed in my life in the months prior to those episodes - and did a little research. I am an RN.
When I was a young child I was allergic to all fruits. I 'outgrew' this around age 8.
In the months prior to my 'episodes' I had made dietary changes to include many fruits - 2-4 servings per day. I cut out those fruits and the episodes nearly disappeared.
Now I get them when I'm stressed: both stress and allergy/immune reactions raise cortisol levels in the blood which can cause unusual symptoms.
I hope this helps you. What changed in your life just before the 'icy-hot' episodes started?

Bon67 01/12/2016

Jill, that is really interesting. I did start adding more fruits and veggies to my diet, before I was on a high protein diet. This started before the fruit I think. I do have a lot of stress in my life right now, waiting on disability and I also have a lawsuit with my ex employer. Hmmm, I wonder about the fruit. Thanks so much for the information.

behere 02/02/2016

that is really interesting about the fruit. I haven't added any fruit or made any big changes to my diet though.

I have the big numb thing too. my head and my ears, my face, pretty much all of me is numb or feels that icy hot frozen burning thing. When it is happening around my ear area it is difficult to hear properly.

It hurts too, not always but the burning on my back hurts like a super sensitive sunburn that has been rubbed raw. sometimes it is only hot./dry ice burning - that is better.

I don't use any artificial sweeteners - those are super bad for us.

not sure what else it would be, except for nerve damage, MS neuropathy. I have had this one area for years now. it does really hurt.

Join the Conversation