I have been on Avonex for about 20 months now (with one or two ocassional 'vacations' from it). I spent all day today dealing with the side effects of last night's injection. I should not be getting these side effects anymore. I want to quit the shots--not just the Avonex, but all of it. Just take LDN. I mentioned this to my neuro. once already and he didn't agree. I am not in an area where it is easy to switch doctors (they are quite rare and finding a good one--like the one I have---is really hard). I have R/R and haven't had major regression of physical function (cognitive, yes). Sometimes I think that w/o the Avonex or other nasty drugs, I would even get better at cognitive function. No new lesions since beg. the Avonex which is why I think my neuro. wants me to stay on it. I am ready to take a chance and go off of it for a few months and just try the LDN. Anyone else done this? Any suggestions?
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